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The Growing Engagement of Emergent Concerned Groups in Political and Economic Life: Lessons from the French Association of Neuromuscular Disease Patients

机译:新兴关注群体在政治和经济生活中的参与度不断提高:法国神经肌肉疾病患者协会的经验教训

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摘要

This article discusses the notion of emergent concerned groups and explores how these groups contribute to shaping the relations between technoscience, politics, and economic markets. The first part presents the case of the French Association of patients suffering from muscular dystrophies. This history suggests that under certain conditions, emergent concerned groups are able to impose a new form of articulation between scientific research and political identities by directly linking the issues of research content and results to that of their place in the collective. The second part argues that the evolution of economic markets, combined with that of science and technology, leads to a multiplication of those emergent concerned groups. The study of the conditions under which these emergent groups become legitimate stakeholders as well as the analysis of their impact on market organization and technosci-entific institutions are key research topics for the near future.
机译:本文讨论了新兴关注群体的概念,并探讨了这些群体如何有助于塑造技术科学,政治和经济市场之间的关系。第一部分介绍了法国肌营养不良患者协会的情况。这段历史表明,在一定条件下,与生俱来的有关团体能够通过直接将研究内容和结果问题与其在集体中的地位联系起来,从而在科学研究和政治身份之间施加一种新的形式。第二部分认为,经济市场的发展与科学技术的发展相结合,导致了那些新兴的相关群体的发展。对这些新兴群体成为合法利益相关者的条件进行研究,以及对其对市场组织和技术机构的影响进行分析,都是近期的关键研究课题。

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