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首页> 外文期刊>Gerontologist, The (Combination: The Gerontologist, The Journals of Gerontology: Series A, & The Journals of Gerontology: Series B)New >Perceptions, Knowledge, Incentives, and Barriers of Brain Donation Among African American Elders Enrolled in an Alzheimer's Research Program
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Perceptions, Knowledge, Incentives, and Barriers of Brain Donation Among African American Elders Enrolled in an Alzheimer's Research Program

机译：参加阿尔茨海默氏症研究计划的非裔美国人老年人的大脑捐赠观念，知识，激励措施和障碍

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Purpose: To learn about African American older adults’ knowledge and perceptions of brain donation, factors that relate to participating or not participating in a brain donation research program, and methods to increase African American brain donation commitment rates in the context of an Alzheimer's disease (AD) research program. Design and Methods: African American older adults (n = 15) from the Boston University Alzheimer's Disease Core Center participant research registry enrolled in 1 of 2 focus groups of 90 min about brain donation. Seven participants were selected for a third follow-up focus group. Results: Focus group transcripts were analyzed using consensual qualitative research methods, and 8 overarching themes emerged: (a) perceptions of and misconceptions about brain donation procedures, (b) racial minorities in medical research, (c) racial disparities and discrimination in medical settings, (d) influence of religion and spirituality, (e) family perceptions of and involvement in donation, (f) family history of disease and desire to find a cure, (g) prior exposure to medical and research settings, and (h) culturally sensitive approaches to brain donation. Implications: Culturally relevant educational protocols need to be created for use with African American older adults. These protocols should include information about brain donation procedures, rates of AD among Black elders, and potential benefits of donation to Black communities; inclusion of religious figures, family, and peers in donation education and decisions; and methods to address mistrust, including cultural competence trainings for staff.
机译：目的：了解非裔美国人对大脑捐赠的知识和认识，与参与或不参与大脑捐赠研究计划有关的因素，以及在阿尔茨海默氏病背景下提高非裔美国人大脑捐赠承诺率的方法（广告）研究计划。设计与方法：来自波士顿大学阿尔茨海默氏病核心中心参与者研究注册表的非洲裔美国老年人（n = 15）参加了90分钟有关脑捐赠的2个焦点小组中的1个。选择了7名参与者参加第三个随访重点小组。结果：使用自愿定性研究方法对焦点小组的成绩单进行了分析，出现了8个总体主题：（a）对脑捐赠程序的认识和误解；（b）医学研究中的少数族裔；（c）种族差异和医疗环境中的歧视，（d）宗教和灵修的影响，（e）家庭对捐赠的理解和参与，（f）家族病史和寻求治愈的愿望，（g）事先接触过医学和研究机构以及（h）对脑捐赠具有文化敏感性的方法。含义：需要创建与文化相关的教育规程，以供非裔美国人老年人使用。这些协议应包括有关大脑捐赠程序，黑人长者中AD的比率以及捐赠给黑人社区的潜在好处的信息；将宗教人物，家庭和同龄人纳入捐赠教育和决策中；解决不信任的方法，包括对员工的文化能力培训。

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