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首页> 外文期刊>Disability and health journal >Caregiver perceptions associated with risk of nursing home admission for people with multiple sclerosis
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Caregiver perceptions associated with risk of nursing home admission for people with multiple sclerosis

机译：与多发性硬化症患者入住疗养院的风险相关的护理人员感知

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Background: About one quarter of people with multiple sclerosis (MS) will need long term care during their disease, with about 5% to 10% requiring extended nursing home care. The study objective was to identify perceptions of informal caregivers associated with the possibility of future nursing home admission for people with MS. Methods: Data were collected in a national survey of informal caregivers (78% were spouses) to people with MS. An ordered logistic regression model analyzed contributions that characteristics of the person with MS and caregiver made to the perceived probability of future nursing home admission. Results: Aging, bowel dysfunction, poorer health, and functional decline in the person with MS, as well as caregiver burden, were associated with increased probability of future admission. Higher family income and greater satisfaction with access to MS-focused care were associated with lower risk of nursing home admission. Conclusions: The rehabilitative, therapeutic, supportive, and maintenance services that contribute to MS-focused care could assist the person with MS and the caregiver adapt to the symptoms that interfere with the ability of the person with MS to function independently in daily life. Informal caregivers provided insights into factors associated with the perceived probability of future nursing home admission, gaining a better understanding of people with MS at risk for institutional care.
机译：背景：大约四分之一的多发性硬化症（MS）患者在疾病期间需要长期护理，其中约5％至10％的患者需要长期护理之家。该研究的目的是确定对非正式护理人员的看法，这些看法与MS患者将来可能会入住疗养院有关。方法：数据收集于对MS患者的非正式护理人员的全国调查（78％为配偶）。一个有序的逻辑回归模型分析了MS和看护者的特征对未来养老院入院概率的贡献。结果：MS患者的衰老，肠功能障碍，健康状况较差和功能下降以及护理人员的负担与将来入院的可能性增加相关。家庭收入增加和对以MS为重点的医疗服务的满意度提高，与较低的疗养院入院风险相关。结论：有助于以MS为中心的护理的康复，治疗，支持和维持服务可以帮助MS患者，并且护理人员可以适应干扰MS患者日常生活中独立能力的症状。非正式护理人员提供了与未来护理院入院概率相关联的因素的见解，从而使对处于机构护理风险中的MS患者有了更好的了解。

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