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WEBSITE REVIEWS

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This section is designed to highlight those websites which may be of use or interest to orthopaedic nurses. If you have found any websites of particular relevance to your work or professional development then please let me know at brian.lucas@whippsx. nhs.uk and I will review them for the Journal.Melorheostosis is a rare (0.9 cases per million persons), non-hereditary bone disease that affects both bone and soft tissue. It is benign but can result in severe functional limitation, extensive pain, and significant deformity. On X-ray the disease's sclerotic bone lesions look like wax dripping down the side of a candle, hence it's name, which is derived from the Greek meios "limb" and rhein "to flow". Adults generally complain of pain, joint stiffness, and progressive deformity. In children the condition affects mainly the bones of the extremities and pelvis, and may result in limb length inequality, deformity, or joint contractures. Joint contractures may be accompanied by extra-osseous bone formation. The website is that of the UK Melorheostosis Association, a pan-European initiative, which aims to provide a virtual meeting point for people with the disease and to support work towards a cure for the disease. The website is still in its infancy and many of the pages, such as those with more details on the symptoms of the disease, are currently empty. However the site does link to the American site which has further information (www.melorhe-ostosis.com). On the UK website there are some case studies and links to latest news with regards to the disease. At present the American site provides more information but the UK site will no doubt develop in the future. A fascinating look at a rare disease.
机译：本节旨在重点介绍那些可能对骨科护士有用或感兴趣的网站。如果您发现任何与您的工作或职业发展特别相关的网站，请通过brian.lucas@whippsx与我联系。我和我将在期刊上对其进行审阅。血液异种增生是罕见的（每百万人中有0.9例）非遗传性骨病，会同时影响骨骼和软组织。它是良性的，但可能导致严重的功能受限，广泛的疼痛和严重的畸形。在X射线上，疾病的硬化性骨损伤看起来像蜡滴落在蜡烛的侧面，因此得名，它取自希腊语meios“四肢”和大黄酸“ to flow”。成人通常抱怨疼痛，关节僵硬和进行性畸形。在儿童中，这种疾病主要影响四肢和骨盆的骨骼，并可能导致肢体长度不均，畸形或关节挛缩。关节挛缩可能伴有骨外骨形成。该网站是泛欧洲倡议的英国Melheheostosis协会的网站，旨在为患有这种疾病的人们提供一个虚拟的聚会点，并支持其治愈疾病的工作。该网站仍处于起步阶段，许多页面（例如，有关该疾病症状的更多详细信息的页面）目前为空。但是，该站点确实链接到具有更多信息的美国站点（www.melorhe-ostosis.com）。在英国网站上，有一些案例研究以及有关该疾病的最新新闻的链接。目前，美国站点提供了更多信息，但英国站点无疑将在未来发展。令人着迷的罕见疾病。

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