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首页> 外文期刊>Qualitative health research >When Family Don't Acknowledge: A Hermeneutic Study of the Experience of Kinship Stigma in Community-Dwelling People With Inflammatory Bowel Disease
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When Family Don't Acknowledge: A Hermeneutic Study of the Experience of Kinship Stigma in Community-Dwelling People With Inflammatory Bowel Disease

机译：当家庭不承认：对炎症肠病的社区住宅人群血清耻辱的经验进行诠释学研究

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摘要

Recent evidence suggests that kinship stigma-the experience of being or feeling stigmatized by family members-arises in the stories of people with inflammatory bowel disease (IBD). Adopting Goffman's definition of stigma as "an attribute which is deeply discrediting," we used hermeneutic (interpretive) phenomenology to further explore the meaning of kinship stigma for people with IBD and reveal its significance. In total, 18 unstructured interviews took place in participants' own homes in the United Kingdom, between July 2015 and April 2016. Transcripts were analyzed using a hermeneutic method to reveal three relational themes and one constitutive pattern. Referring to relevant literature, the presence and impact of kinship stigma on people with IBD is revealed. Kinship stigma-experienced as and meaning a lack of acknowledgment-may have wide-ranging implications for health and social care professionals caring for persons with IBD or other chronic illness and their families.
机译：最近的证据表明，在炎症性肠病（IBD）患者的故事中，亲属污名——被家庭成员污名化或感觉被污名化的经历——出现了。我们采用戈夫曼对污名的定义，将其定义为“一种极不可信的属性”，运用解释学（解释性）现象学进一步探索IBD患者亲属污名的含义，并揭示其意义。2015年7月至2016年4月，总共有18次非结构化访谈在英国参与者自己的家中进行。使用解释学方法对转录本进行分析，以揭示三个相关主题和一种构成模式。参考相关文献，揭示了亲属污名对IBD患者的存在及其影响。亲属关系污名被视为缺乏承认，这可能对照顾IBD或其他慢性病患者及其家人的卫生和社会护理专业人员产生广泛影响。

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