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首页> 外文期刊>Qualitative health research >The Construction of “Self” in Individuals With Congenital Facial Palsy
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The Construction of “Self” in Individuals With Congenital Facial Palsy

机译：先天性面部麻痹的个人中“自我”的构建

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摘要

Congenital facial palsy is a rare medical condition that causes paralysis of the facial muscles, lack of facial expression, and an unusual appearance. Findings from developmental psychology suggest that the face plays a central role in the construction of self. Semi-structured interviews were conducted with 14 adults born with congenital facial palsy. Participant’s constructions of self across the life span were explored and a grounded theory of this process was constructed. Theoretical sampling was conducted with two parents of children born with the condition. All participants reported “struggling to make connections,” “experiencing invalidation,” and “struggling to regulate affect,” which lead to “constructing a defective sense of self.” Alternatively, “making validating connections” facilitated the process of “constructing a validated sense of self.” This study provides insight into the unique social and emotional challenges often experienced by those born with congenital facial palsy and highlights the need for early psychosocial intervention.
机译：先天性面瘫是一种罕见的医学疾病，可导致面肌麻痹、面部表情缺失和不寻常的外观。发展心理学的研究结果表明，面孔在自我建构中起着核心作用。对14名先天性面神经麻痹的成年人进行了半结构式访谈。本研究探讨了参与者在整个生命周期中的自我建构，并构建了这一过程的基础理论。对出生时患有该疾病的孩子的双亲进行了理论抽样。所有参与者都表示“努力建立联系”、“经历无效”和“努力调节情感”，这导致“构建有缺陷的自我意识”或者，“建立有效的联系”促进了“构建有效的自我意识”的过程这项研究为先天性面瘫患者提供了独特的社会和情感挑战，并强调了早期心理社会干预的必要性。

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