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首页> 外文期刊>The American journal of geriatric psychiatry: official journal of the American Association for Geriatric Psychiatry >Contributions of Persons Living With Dementia to Scientific Research Meetings. Results From the National Research Summit on Care, Services, and Supports for Persons With Dementia and Their Caregivers
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Contributions of Persons Living With Dementia to Scientific Research Meetings. Results From the National Research Summit on Care, Services, and Supports for Persons With Dementia and Their Caregivers

机译：痴呆症患者对科研会议的贡献。 国家研究首脑会议关于护理，服务和支持痴呆症及其护理人员的支持

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Objective: Inclusion of patients in research activities has increased in the United States but no guidelines for inclusion of individuals with cognitive impairment exist. The experiences from the Persons Living with Dementia (PLWD) Stakeholder Group that formed to support the first National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers provided a test of feasibility of this type of participation for a major research meeting and an opportunity to understand specific contributions of the Group. Methods: The PLWD Stakeholder Group was formed by Summit cochairs as one of six stakeholder groups charged with providing input into the Summit agenda and meeting recommendations. Members were recruited through clinician/researchers with personal knowledge of potential members. Following the Summit, Group members convened to review Group contributions to the Summit agenda, list of speakers, and Summit research recommendations. Results: The PLWD Group influenced the content of the Summit agenda and some Group members were invited to contribute through Summit presentations. The Group influenced Summit outcomes: of the 58 research recommendations that emerged, 30 express ideas contributed by the PLWD. Conclusions: The Stakeholder Group for PLWD proved feasible to implement and impacted the agenda and output of a major national research meeting on dementia.
机译：目的：在美国，研究活动中纳入患者的人数有所增加，但没有关于纳入认知障碍患者的指南。痴呆症患者（PLWD）利益相关者团体为支持第一届全国痴呆症患者及其护理者护理、服务和支持研究峰会而成立，其经验为此类参与大型研究会议的可行性提供了测试，并为了解该团体的具体贡献提供了机会。方法：PLWD利益相关者小组由峰会共同主席组成，是负责为峰会议程和会议建议提供投入的六个利益相关者小组之一。成员是通过临床医生/研究人员招募的，他们对潜在成员具有个人知识。峰会之后，小组成员召开会议，审查小组对峰会议程的贡献、发言者名单和峰会研究建议。结果：PLWD小组影响了峰会议程的内容，一些小组成员被邀请通过峰会演讲做出贡献。该小组对峰会结果产生了影响：在出现的58项研究建议中，有30项表达了PLWD提出的想法。结论：PLWD的利益相关者小组被证明是可行的，并影响了一次关于痴呆症的大型全国研究会议的议程和成果。

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