Psychosocial Adjustment to Illness Scale in family caregivers of patients with Parkinson's Disease: Spanish validation study

Ambrosio Leire; Victoria Navarta-Sanchez Ma; Carmen Portillo Ma; Martin-Lanas Raquel; Recio Miriam; Riverol Mario

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Psychosocial Adjustment to Illness Scale in family caregivers of patients with Parkinson's Disease: Spanish validation study

机译：帕金森病患者家庭照顾者的心理社会调整：西班牙语验证研究

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Psychosocial adjustment to a complex and disabling long-term condition like Parkinson ' s disease is a complex, dynamic, cyclical and interactive process. Family caregivers, face multiple challenges that require a significant effort in terms of psychosocial adjustment, which must be considered by healthcare professionals in order to provide a holistic care. The patients' self-report version of the Psychosocial Adjustment to Illness Scale (PAIS-SR), which has been validated in Spain for use in Parkinson's disease, is designed to evaluate the psychosocial adjustment of patients. Our purpose was to validate the Spanish PAIS-SR version for caregivers of patients with Parkinson's disease. An open, national cross-sectional study with one point-in-time evaluation and retest was carried out in 450 family caregivers of patients with Parkinson's disease. Data were collected in Spain from April 2016 to September 2017. The psychometric analysis performed showed that the Spanish version of the PAIS-SR for caregivers presents adequate indicators of reliability, internal and external validity, and is structured according to the seven-domain model proposed by the author of the instrument.

机译：对帕金森病等复杂且致残的长期疾病的心理社会适应是一个复杂、动态、周期性和互动的过程。家庭护理人员面临着多重挑战，需要在心理社会调整方面做出重大努力，医疗保健专业人员必须考虑到这一点，以便提供全面护理。患者自我报告版本的疾病心理社会适应量表（PAIS-SR）已在西班牙验证用于帕金森病，旨在评估患者的心理社会适应。我们的目的是为帕金森病患者的护理者验证西班牙PAIS-SR版本。对450名帕金森病患者的家庭照顾者进行了一项开放的、全国性的横断面研究，包括单时间点评估和再测试。数据收集于2016年4月至2017年9月的西班牙。进行的心理测量学分析表明，西班牙版的照料者PAIS-SR提供了足够的信度、内部和外部效度指标，并根据该工具作者提出的七域模型构建。

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来源
《Health & social care in the community》 |2021年第4期|共11页
作者
Ambrosio Leire; Victoria Navarta-Sanchez Ma; Carmen Portillo Ma; Martin-Lanas Raquel; Recio Miriam; Riverol Mario;
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作者单位

Univ Navarra Fac Nursing Pamplona Spain;

Autonomous Univ Madrid Fac Med Dept Nursing Madrid Spain;

Univ Southampton Fac Hlth Sci Southampton Hants England;

Clin Univ Navarra Dept Psychiat &

Clin Psychol Pamplona Spain;

Clin Univ Navarra Dept Neurol Pamplona Spain;

Clin Univ Navarra Dept Neurol Pamplona Spain;

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原文格式 PDF
正文语种 eng
中图分类保健组织与事业（卫生事业管理）;
关键词
family caregivers; PAIS-SR; Parkinson's disease; psychometric properties; psychosocial adjustment; validation study;

机译：家庭照顾者;PAI-SR;帕金森病;心理测量;心理社会调整;验证研究;

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机译：用帕金森病的人们对疾病规模（PAI-SR）的心理社会调整的飞行员研究
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机译：痴呆症和帕金森病的家庭成员家庭护理人员的心理社会调整：比较研究
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机译：中国帕金森氏病患者的睡眠障碍：帕金森氏病中文量表的验证研究。
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机译：用于帕金森氏病患者及其护理人员的远程监控和协助的移动应用程序
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机译：危及生命的疾病的体验：垂死的癌症患者及其家庭护理人员的现象学研究
9. A pilot study on the Spanish version of the Psychosocial Adjustment to Illness Scale (PAIS‐SR) with carers of people with Parkinsons disease [O] . Mari Carmen Portillo, Leire Ambrosio, Raquel Lanas Martín, 2019

机译：对患有帕金森氏病患者的照护者进行西班牙语版本的疾病适应心理社会适应量表（PAIS-SR）的初步研究
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Psychosocial Adjustment to Illness Scale in family caregivers of patients with Parkinson's Disease: Spanish validation study

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