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首页> 外文期刊>Journal of empirical research on human research ethics : >Informed Consent for Mobile Phone Health Surveys in Colombia: A Qualitative Study
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Informed Consent for Mobile Phone Health Surveys in Colombia: A Qualitative Study

机译：知情同意哥伦比亚的手机健康调查：定性学

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摘要

Public health surveys deployed through automated mobile phone calls raise a set of ethical challenges, including succinctly communicating information necessary to obtain respondent informed consent. This study aimed to capture the perspectives of key stakeholders, both experts and community members, on consent processes and preferences for participation in automated mobile phone surveys (MPS) of non-communicable disease risk factors in Colombia. We conducted semi-structured interviews with ethics and digital health experts and focus group discussions with community representatives. There was meaningful disagreement within both groups regarding the necessity of consent, when the purpose of a survey is to contribute to the formulation of public policies. Respondents who favored consent emphasized that consent communications ought to promote understanding and voluntariness, and implicitly suggested that information disclosure conform to areasonable personstandard. Given the automated and unsolicited nature of the phone calls and concerns regarding fraud, trust building was emphasized as important, especially for national MPS deployment. Community sensitization campaigns that provide relevant contextual information (such as the name of the administering institution) were thought to support trust-building. Additional ways to achieve the goals of consent while building trust in automated MPS for disease surveillance should be evaluated in order to inform ethical and effective practice.
机译：通过自动手机电话进行的公共卫生调查带来了一系列道德挑战，包括简洁地传达获得受访者知情同意所需的信息。本研究旨在捕捉关键利益相关者（包括专家和社区成员）对哥伦比亚非传染性疾病风险因素自动手机调查（MPS）的同意过程和偏好的看法。我们与伦理和数字健康专家进行了半结构化访谈，并与社区代表进行了焦点小组讨论。当调查的目的是为公共政策的制定做出贡献时，两组人在同意的必要性方面存在着有意义的分歧。赞成同意的受访者强调，同意沟通应该促进理解和自愿，并暗示信息披露符合合理的个人标准。考虑到电话的自动化和主动性质，以及对欺诈的担忧，建立信任被强调为重要，尤其是对国家MPS部署而言。提供相关背景信息（如管理机构的名称）的社区宣传活动被认为有助于建立信任。在建立对疾病监测自动化MPS的信任的同时，应评估实现同意目标的其他方法，以便为伦理和有效实践提供信息。

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