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首页> 外文期刊>Journal of paediatrics and child health >Impact of the COVID-19 pandemic on the well-being of children with neurodevelopmental disabilities and their parents
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Impact of the COVID-19 pandemic on the well-being of children with neurodevelopmental disabilities and their parents

机译：Covid-19大流行对神经发育残疾儿童福祉的影响及其父母

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Aims: To examine the impact of COVID-19 pandemic on child mental health and socio-emotional and physical well-being (including sleep, diet, exercise, use of electronic media; care giver perceptions of symptoms of child neurodevelopmental disability [NDD] and comorbidities), and care giver mental health and well-being, social support and service use.Methods: An online cross-sectional self-report survey was distributed via disability service providers and support groups. Care givers of children aged 2-17 years with a NDD were invited to respond to questions on child symptom severity and well-being, parent well-being and service access and satisfaction.Results: Overall, 302 care givers (94.7% female) completed the survey. Average child age was 9.7 years and 66.9% were male. Worsening of any child NDD or comorbid mental health symptom was reported by 64.5% of respondents and 76.9% reported child health and well-being was impacted by COVID-19. Children were viewing more television and digital media (81.6%), exercising less (68.0%), experiencing reduced sleep quality (43.6%) and had a poorer diet (32.4%). Almost one fifth (18.8%) of families reported an increase in the dosage of medication administered to their child. Parents reported COVID-19 had impacted their own well-being (76.1%). Over half of respondents were not satisfied with services received during COVID-19 (54.8%) and just 30% reported that telehealth works well for their child.Conclusion: Targeted interventions are required to address worsening child neurodevelopmental disability, mental health symptoms and poor diet, sleep and exercise patterns. Improved access to telehealth services is indicated, as is further research on barriers and enablers of effective telehealth services.
机译：目的：研究2019冠状病毒疾病对儿童心理健康和社会情绪和身体健康的影响（包括睡眠、饮食、运动、使用电子媒介、照顾者对儿童神经发育障碍症状的认知）和照顾者的心理健康和幸福感、社会支持和服务使用。方法：通过残疾服务提供者和支持团体进行在线横断面自我报告调查。2-17岁患有NDD的儿童的护理人员被邀请回答有关儿童症状严重程度和幸福感、父母幸福感、服务获得和满意度的问题。结果：总体而言，302名护理人员（94.7%为女性）完成了调查。儿童平均年龄为9.7岁，66.9%为男性。64.5%的受访者报告2019冠状病毒疾病或共病心理健康状况恶化，76.9%的儿童健康和幸福感受到COVID-19的影响。孩子们看电视和数字媒体的次数较多（81.6%），锻炼较少（68.0%），睡眠质量下降（43.6%），饮食较差（32.4%）。近五分之一（18.8%）的家庭报告给孩子服用的药物剂量增加。父母报告2019冠状病毒疾病影响了他们自己的幸福感（76.1%）。在2019冠状病毒疾病患者中，超过一半的受访者对服务不满意，仅有30%的受访者报告远程健康对他们的孩子工作良好。结论：需要有针对性的干预措施来解决日益恶化的儿童神经发育障碍、心理健康症状以及不良的饮食、睡眠和运动模式。报告指出，远程保健服务的获得情况有所改善，关于有效远程保健服务的障碍和促成因素的进一步研究也表明了这一点。

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