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Development of a New Tool for Better Social Recognition of Cancer Information and Support Activities Under the National Cancer Control Policy in Japan

机译:开发新工具,以更好地社会认识到日本国家癌症控制政策下的癌症信息和支持活动

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Under the recent trend of an increasing number of cancer survivors, there is a need to devise measures for visualization of medical care and public health programs related to cancer control, which will enable better overview of the activities at hospitals and local communities and allow various stakeholders to share the information about such activities. The aim of this study was to propose a new tool for proper implementation of cancer information and support programs provided under the national cancer control policy in Japan. Considering 5 elements reported by Handler et al (macro context, mission, structural capacity, processes, and outcomes), we conducted the focus group discussions to confirm the goals of activities of Cancer Information and Support Centers. Eventually, 2 final goals ("reduction in the number of patients/families having difficulties related to cancer" and "being able to live at ease even after diagnosis of cancer") were identified, accompanied by 5 semifinal goals and 16 prerequisite conditions needed to achieve the final goals, as well as the necessary states and the activity indicators corresponding to them. This tool was utilized by 180 (42.7%) of 422 cancer care hospitals designated by the government of Japan (designated cancer care hospitals [DCCHs]) in 2016 and by 336 (77.1%) of 436 DCCHs in 2018, which were the data at 6 months and 3 years after introduction of the tool, respectively. Thus, the tool for evaluating the Cancer Information and Support Centers' activity presented here is expected to stimulate the stakeholders involved in providing supports in various fields of each local community, to share the final goals, to evaluate the status of their achievement, and to further advance their own activities.
机译:在癌症幸存者人数不断增加的近期趋势下,有必要制定措施,以可视化与癌症控制相关的医疗保健和公共卫生项目,从而更好地概述医院和当地社区的活动,并允许各利益相关者分享有关此类活动的信息。这项研究的目的是提出一种新的工具,用于正确实施根据日本国家癌症控制政策提供的癌症信息和支持项目。考虑到Handler等人报告的5个要素(宏观背景、任务、结构能力、过程和结果),我们进行了焦点小组讨论,以确认癌症信息和支持中心的活动目标。最终,确定了2个最终目标(“减少与癌症相关的患者/家庭数量”和“即使在诊断出癌症后也能安心生活”),以及5个半最终目标和实现最终目标所需的16个先决条件,以及与之对应的必要状态和活动指标。2016年,日本政府指定的422家癌症护理医院(指定癌症护理医院[DCCHs])中有180家(42.7%)使用了该工具,2018年436家DCCHs中有336家(77.1%)使用了该工具,这两个数据分别是该工具引入后6个月和3年的数据。因此,本文介绍的评估癌症信息和支持中心活动的工具预计将激励参与在每个当地社区的各个领域提供支持的利益相关者,分享最终目标,评估他们的成就状况,并进一步推进他们自己的活动。

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