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Patients' Communication Preferences Around Cancer Symptom Reporting During Cancer Treatment: A Phenomenological Study

机译:患者在癌症治疗期间癌症症状报告的患者的交流偏好:一种现象学研究

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Background: The purpose of this descriptive phenomenological study was to gain an in-depth understanding of cancer patients' experiences and perspectives on self-reporting their symptoms. Patients with cancer experience a wide variety of symptoms from both their disease and treatment, yet clinicians are often unaware of their patients' symptoms due to poor reporting methods. Poorly documented symptoms are more likely to go untreated, causing increased symptom distress and decreased quality of life for patients. Effective, real-time communication between patients and health-care practitioners is key to symptom assessment and management. Moreover, it is important for patients' communication preferences to be taken into account when developing symptom management plans. Methods: This qualitative study focused on the symptom reporting experiences of 13 adults in the United States with advanced or metastatic cancer who were undergoing systemic cancer treatment. Data were collected via interviews. Results: The findings revealed that a personalized symptom management plan, prompt reporting, and timely communication with health-care practitioners improved patients' physical and emotional wellbeing. Conclusions: A better understanding of cancer patients' experiences self-reporting their symptoms may lead to improved communication methods and more effective reporting systems, which ultimately reduce patient burden and enhance patients' self-advocacy. Ensuring that patients' preferences for reporting their symptoms are met may positively influence the likelihood and timeliness of symptom self-reporting. Developing new and improved ways for health-care teams to manage symptoms is vital to improving patients' quality of life.
机译:背景:这项描述性现象学研究的目的是深入了解癌症患者自我报告症状的经历和观点。癌症患者在疾病和治疗中都会经历各种各样的症状,但由于报告方法不当,临床医生往往不知道患者的症状。记录不良的症状更有可能得不到治疗,导致症状加重,患者生活质量下降。患者和医护人员之间的有效、实时沟通是症状评估和管理的关键。此外,在制定症状管理计划时,考虑患者的沟通偏好也很重要。方法:这项定性研究集中于美国13名接受系统性癌症治疗的晚期或转移性癌症患者的症状报告经历。通过访谈收集数据。结果:研究结果显示,个性化的症状管理计划、及时的报告以及与医护人员的及时沟通改善了患者的身心健康。结论:更好地了解癌症患者自我报告症状的经历可能会改进沟通方法和更有效的报告系统,从而最终减轻患者负担,增强患者的自我宣传。确保患者报告症状的偏好得到满足可能会对症状自我报告的可能性和及时性产生积极影响。为医疗团队开发新的和改进的症状管理方法对于提高患者的生活质量至关重要。

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