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Palliative care

机译:姑息治疗

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摘要

Patients with a severe phenotype for sickle cell disease experience many complications resulting in end organ damage and early death, but the review article did not mention palliative or end of life care.These patients have many unmet end of life issues. Symptoms such as pain and dyspnoea are severe, and social issues result from recurrent or long hospital stays and increasing dependency in activities of daily living. Much psychological and spiritual distress comes from declining health and the knowledge of a short prognosis. Patients with severe disease should be referred to palliative care to work in partnership with the haematologist to deliver end of life care in line with the government's recently published strategy.
机译:严重的患者为镰状细胞表型疾病经历许多并发症产生最终器官损伤和早期死亡”,但“评论文章没有提及姑息或结束生活的关心。生命的问题。严重的呼吸困难,社会问题的结果反复或长期住院增加依赖的日常活动生活。来自健康和知识的下降一个简短的预后。应该被称为姑息治疗工作吗与血液学学者将结束生活保健符合政府的最近出版的战略。

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