Content validity of Patient-Reported Outcomes Measurement Information System (PROMIS) items in the context of HIV clinical care

Edwards TC; Fredericksen RJ; Crane HMCrane PKKitahata MMMathews WCMayer KHMorales LSMugavero MJSolorio RYang FMPatrick DL

首页> 外文期刊>Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation >Content validity of Patient-Reported Outcomes Measurement Information System (PROMIS) items in the context of HIV clinical care

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Content validity of Patient-Reported Outcomes Measurement Information System (PROMIS) items in the context of HIV clinical care

机译：Content validity of Patient-Reported Outcomes Measurement Information System (PROMIS) items in the context of HIV clinical care

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abstract_textpPurpose To assess content validity and patient and provider prioritization of Patient-Reported Outcomes Measurement Information System (PROMIS) depression, anxiety, fatigue, and alcohol use items in the context of clinical care for people living with HIV (PLWH), and to develop and assess new items as needed./ppMethods We conducted concept elicitation interviews (n = 161), item pool matching, prioritization focus groups (n = 227 participants), and cognitive interviews (n = 48) with English-speaking (similar to 75 %) and Spanish-speaking (similar to 25 %) PLWH from clinical sites in Seattle, San Diego, Birmingham, and Boston. For each domain we also conducted item review and prioritization with two HIV provider panels of 3-8 members each./ppResults Among items most highly prioritized by PLWH and providers were those that included information regarding personal impacts of the concept being assessed, in addition to severity level. Items that addressed impact were considered most actionable for clinical care. We developed additional items addressing this. For depression we developed items related to suicide and other forms of self-harm, and for all domains we developed items addressing impacts PLWH and/or providers indicated were particularly relevant to clinical care. Across the 4 domains, 16 new items were retained for further psychometric testing./ppConclusion PLWH and providers had priorities for what they believed providers should know to provide optimal care for PLWH. Incorporation of these priorities into clinical assessments used in clinical care of PLWH may facilitate patient-centered care./p/abstract_text

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《Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation》 |2016年第2期|293-302|共10页
作者
Edwards TC; Fredericksen RJ; Crane HMCrane PKKitahata MMMathews WCMayer KHMorales LSMugavero MJSolorio RYang FMPatrick DL;
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University of Washington,Univ Washington;

University of California San Diego,Univ Calif San Diego;

Harvard University,Harvard UnivUniversity of Alabama Birmingham,Univ Alabama BirminghamGeorgia Regents University,Georgia Regents Univ;

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原文格式 PDF
正文语种英语
中图分类医药、卫生;
关键词
HIV; Clinical practice; Patient-centered outcomes; PROMIS; QUALITY-OF-LIFE; VALIDATION; ROUTINE; AUDIT; PAIN;

Content validity of Patient-Reported Outcomes Measurement Information System (PROMIS) items in the context of HIV clinical care

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