Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form

Coretta Jenerette; Julia O’Brien; Cheedy JajaEvanilda Souza de Santana CarvalhoCheryl BrewerRonald L. Hickman

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Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form

机译：Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form

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Health-related stigma, a form of devaluation related to a health condition, is common in individuals with sickle cell disease (SCD). Pain is the hallmark symptom of SCD, and health-related stigma is often described during care-seeking for pain management. Few published instruments measure health-related stigma in individuals with SCD. This study builds on the psychometrics of the 30- and 40-item Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS). In a sample of 197 adults with SCD, the results support the reliability and validity of a 21-item scale, the SCD-HRSS-Short Form, with an overall Cronbach’s alpha reliability of 0.91 and discriminant validity with the PROMIS-29 subscales (anxiety, depressive symptoms, pain interference, physical fatigue, sleep, and role satisfaction). A shorter yet reliable and valid scale may decrease the burden for this underrepresented, minoritized population while still providing important information regarding their experiences of stigmatization.

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来源
《Western journal of nursing research》 |2023年第5期|425-431|共7页
作者
Coretta Jenerette; Julia O’Brien; Cheedy JajaEvanilda Souza de Santana CarvalhoCheryl BrewerRonald L. Hickman;
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作者单位

2School of Nursing, University of Pittsburgh;

1College of Nursing, University of South Carolina;

3Department of Health, State University of Feira de Santana4Private Diagnostic Clinics, Duke Health5Frances Payne Bolton School of Nursing, Case Western Reserve University;

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原文格式 PDF
正文语种英语
中图分类护理学;
关键词
instrument development; psychometrics; sickle cell; pain; stigma;

Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form

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