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首页> 外文期刊>Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation >Well-being in mothers of children with congenital heart defects: A 3-year follow-up
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Well-being in mothers of children with congenital heart defects: A 3-year follow-up

机译：Well-being in mothers of children with congenital heart defects: A 3-year follow-up

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Purpose: This prospective case-cohort study compared subjective well-being (SWB) among mothers whose children had various degrees of congenital heart defects (CHD) with mothers of children without CHD (controls). Methods: Nationwide CHD registry data were linked to data collected from the Norwegian Mother and Child Cohort Study at gestational week 30, 6 months, and 36 months postpartum. A total of 175 mothers of children with mild, moderate, and severe CHD were identified in a cohort of 44,144 mothers. The SWB index was operationalized by means of three subscales: a cognitive aspect, positive affect, and negative affect. Results: Mothers of children with severe CHD reported significantly lower SWB than the controls at 6 months postpartum (p =.003), with further decrease in SWB at 36 months postpartum (p =.001). SWB levels in the mild and moderate CHD group did not deviate significantly from controls. Conclusions: The findings suggest a pattern in which all stressors concerning the severely ill child lead to significant deterioration of maternal well-being. Having a child with mild or moderate CHD, which is a less severe and shorter-term stressor, did not reduce mothers' well-being.

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