Validation of the Swedish version of PROMIS-29v2 and FACIT-Dyspnea Index in patients with systemic sclerosis

Wuttge Dirk M.; Chaplin John E.; Sandqvist Gunnel

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Validation of the Swedish version of PROMIS-29v2 and FACIT-Dyspnea Index in patients with systemic sclerosis

机译：Validation of the Swedish version of PROMIS-29v2 and FACIT-Dyspnea Index in patients with systemic sclerosis

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Purpose To evaluate the reliability, internal consistency, and construct validity of the Swedish versions of PROMIS-29 and Functional Assessment of Chronic Illness Therapy-Dyspnea (FACIT-Dyspnea) instruments in patients with systemic sclerosis (SSc). Methods In a cross-sectional study, consecutive SSc patients completed a paper-based survey. Internal consistency was assessed using Cronbach's alpha. Test-retest reliability was tested employing weighted Kappa (K-w) and intra-class correlation coefficient (ICC). Construct validity was evaluated by hypotheses testing using RAND-36, MRC Dyspnea score, Scleroderma Health Assessment Questionnaire (SHAQ) and clinical measurements. Results Forty-nine patients (86 female; 73 limited cutaneous SSc) completed the survey. The mean disease duration was 11 years and mean SHAQ was 0.5. Internal consistency and test-retest reliability were good with the exception of PROMIS-29 anxiety. PROMIS-29, FACIT-Dyspnea, and Functional limitation showed strong correlations to corresponding RAND-36 domains (r(s)=0.67 to -0.85). Relevant PROMIS-29 domains, FACIT-Dyspnea and Functional limitation correlated strongly to SHAQ and VAS overall disease severity (r(s)=0.60 to -0.75). Ceiling effects (>15) were found in six PROMIS-29 domains and in both FACIT-Dyspnea and Functional limitations. Four (4/5) hypotheses were confirmed. Conclusions PROMIS-29 and FACIT-Dyspnea meet the requirements for reliability and have adequate construct validity in Swedish patients with SSc.

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《Disability and rehabilitation.》 |2023年第15期|2517-2525|共9页
作者
Wuttge Dirk M.; Chaplin John E.; Sandqvist Gunnel;
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作者单位

Lund University,Lund Univ;

Inst Clin Sci,Gothenburg Univ;

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原文格式 PDF
正文语种英语
中图分类康复医学;
关键词
Sclerosis; systemic; scleroderma; patient reported outcome measures; health-related quality-of-life; test-retest reliability; QUALITY-OF-LIFE; HEALTH-ASSESSMENT QUESTIONNAIRE; OUTCOMES MEASUREMENT; REPORTED OUTCOMES; SHORT-FORMS; PSYCHOMETRIC PROPERTIES; DISEASE SEVERITY; SCLERODERMA; VALIDITY; CLASSIFICATION;

Validation of the Swedish version of PROMIS-29v2 and FACIT-Dyspnea Index in patients with systemic sclerosis

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