Public Perceptions of Cohort Studies and Biobanks in Germany

Johannes Starkbaum; Herbert Gottweis; Ursula GottweisChristina KleiserJakob LinseisenChrista MeisingerPanagiotis KamtsiurisSusanne MoebusKarl-Heinz J?ckelSonja B?rmH.-Erich Wichmann

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Public Perceptions of Cohort Studies and Biobanks in Germany

机译：Public Perceptions of Cohort Studies and Biobanks in Germany

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Cohort studies and biobank projects have led to public discussions in several European countries in the past. In Germany, many medium-sized studies are currently running successfully in terms of respondent rates. However, EU-wide research on general public perceptions of biobanks and cohort studies have shown that Germany is among those countries where people express the highest reluctance for providing body material and other data for research purposes. Because of early efforts of the just-initiated German National Cohort Study, we are able to begin to investigate in greater detail how various groups of people across Germany reflect and discuss the ongoing implementation of cohort studies and biobanking in Germany. Our research is based on 15 focus group discussions in four German regions, as well as on Eurobarometer poll data on biobanking.

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《Biopreservation and biobanking》 |2014年第2期|121-130|共10页
作者
Johannes Starkbaum; Herbert Gottweis; Ursula GottweisChristina KleiserJakob LinseisenChrista MeisingerPanagiotis KamtsiurisSusanne MoebusKarl-Heinz J?ckelSonja B?rmH.-Erich Wichmann;
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作者单位

Department of Political Science, Life Science Governance Research Platform, University of Vienna, Vienna, Austria;

Institute of Epidemiology I, Helmholtz Centre, Munich, Germany;

Friedrich Alexander University Erlangen-Nuremberg, Section for Systematic Theology II (Ethics), Nuremberg, GermanyRobert Koch Institute (RKI), Berlin, GermanyInstitute of Medical Informatics, Biometry and Epidemiology, University Clinics Essen, Essen, GermanyInstitute of Epidemiology, University of Kiel, Kiel, Germany;

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正文语种英语
中图分类细胞生物学;
关键词
Public Perceptions; Cohort Studies; Biobanks;

Public Perceptions of Cohort Studies and Biobanks in Germany

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