Health-related quality of life among children, adolescents, and adults with bladder exstrophy-epispadias complex: a systematic review of the literature and recommendations for future research

Dellenmark-Blom Michaela; Sjostrom Sofia; Abrahamsson KateHolmdahl Gundela

首页> 外文期刊>Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation >Health-related quality of life among children, adolescents, and adults with bladder exstrophy-epispadias complex: a systematic review of the literature and recommendations for future research

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Health-related quality of life among children, adolescents, and adults with bladder exstrophy-epispadias complex: a systematic review of the literature and recommendations for future research

机译：Health-related quality of life among children, adolescents, and adults with bladder exstrophy-epispadias complex: a systematic review of the literature and recommendations for future research

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Purpose Bladder exstrophy-epispadias complex (BEEC) is a rare spectrum of genitourinary malformations. Children risk long-term urinary and genital dysfunctions. To achieve a comprehensive understanding, this study aimed to review the literature on generic and disease-specific health-related quality of life (HRQOL) in BEEC patients, and methodologies used.

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来源
《Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation》 |2019年第6期|1389-1412|共24页
作者
Dellenmark-Blom Michaela; Sjostrom Sofia; Abrahamsson KateHolmdahl Gundela;
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作者单位

Sahlgrens Univ Hosp, Queen Silvia Childrens Hosp, Dept Pediat Surg, S-41685 Gothenburg, Sweden;

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原文格式 PDF
正文语种英语
中图分类医药、卫生;
关键词
Bladder exstrophy; Epispadia; Bladder exstrophy-epispadias complex; Malformation; Health-related quality of life; Patient-reported outcome;

Health-related quality of life among children, adolescents, and adults with bladder exstrophy-epispadias complex: a systematic review of the literature and recommendations for future research

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