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Confidentiality Concerns Raised by DNA-Based Tests in the Market-Driven Managed Care Setting (Final Report)

机译:市场驱动的管理式护理环境中基于DNa的测试引发的保密问题(最终报告)

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In a policy climate where incentives to cherry pick are minimized, Managed Care Organizations can implement practices that safeguard medical privacy to the extent that data is protected from falling into the hands of third parties who could misuse it to discriminate. To the extent that these practices have been codified into the regulatory framework of the Health Insurance Portability and Accountability Act (HIPAA) consumers may be able to rest easy about their genetic data being revealed to third parties who may discriminate. However, there are limitations to the use of policy instruments to prevent the discrimination of an entire genre of clients by market driven managed care organizations. Policy measures, to assure that knowledge of genetic conditions and their future costs would not be used by market driven managed care organizations to implement institutional policies and products that would implicitly discriminate against a genre of clients with genetic conditions, present difficulties.

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