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首页> 外文OA文献 >Development of a measure (ICECAP-Close Person Measure) through qualitative methods to capture the benefits of end-of-life care to those close to the dying for use in economic evaluation
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Development of a measure (ICECAP-Close Person Measure) through qualitative methods to capture the benefits of end-of-life care to those close to the dying for use in economic evaluation

机译：通过定性方法制定一项措施（ICECAP亲密人士措施），以将临终护理的好处带给濒临死亡者，以用于经济评估

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Background: End of life care affects both the patient and those close to them. Typically those close to the patient are not considered within economic evaluation, which may lead to the omission of important benefits resulting from end of life care.Aim: To develop an outcome measure suitable for use in economic evaluation that captures the benefits of end of life care to those close to the dying.Design: To develop the descriptive system for the outcome measure. In-depth qualitative interviews were conducted with the participants and constant comparative analysis methods were used to develop a descriptive system for the measure.Participants: Twenty seven individuals bereaved within the last 2 years or with a close person currently receiving end of life care were purposively recruited into the study. Participants were recruited through newsletters, adverts, snowball sampling and a local hospice.Results: Twenty seven individuals were recruited. A measure of capability with six attributes, each with five levels was developed based on themes arising from the analysis. Attributes comprise: good communication with services; privacy and space to be with the loved one; emotional support; practical support; being able to prepare and cope; and being free from emotional distress related to the condition of the decedent.Conclusion: This measure is designed to capture the benefits of end of life care to close persons for use in economic evaluation. Further research should value the measure and develop methods for incorporating outcomes for close-persons into economic evaluation.
机译：背景：生命周期终止护理会同时影响患者及其身边的人。通常，与患者关系密切的患者不在经济评估范围之内，这可能会导致生命周期结束后遗漏重要收益。目的：制定一种适用于经济评估的结果指标，以获取生命周期终期的收益设计：开发用于结果度量的描述性系统。与参与者进行了深入的定性访谈，并使用了持续的比较分析方法来开发该指标的描述系统。参与者：过去两年中有27名患者丧生，或者与目前正在接受生命终期关怀的近亲有意招募进入研究。通过通讯，广告，雪球采样和当地的临终关怀招募了参与者。结果：招募了27个人。基于分析产生的主题，开发了具有六个属性（每个属性具有五个级别）的能力度量。属性包括：与服务的良好沟通；与亲人在一起的隐私和空间；情感支持;实际支持；能够准备和应付；结论：该措施旨在捕获终生护理对亲密人士的好处，以用于经济评估。进一步的研究应重视该措施，并开发将近人成果纳入经济评估的方法。

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