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Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development

机译：在创伤性脑损伤后建立一个以人为中心的自我认同框架：一个扎根的理论研究，为测量发展提供信息

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Objective To develop a theoretically sound, client-derived framework to underpin development of a measure reflecting the impact of traumatic brain injury (TBI) on a person's self-identity.Design Grounded theory, based on transcription of audio recordings from focus group meetings with people who have experienced TBI, analysed with constant comparative methods.Setting 8 different urban and rural communities in New Zealand.Participants 49 people (34 men, 15 women), 6 months to 36 years after mild-to-severe TBI.Results The central concept emerging from the data was that of desiring to be or having lost a sense of being an integrated and valued person. The three main subthemes were: (1) having a coherent, satisfying and complete sense of oneself, (2) respect, validation and acceptance by others and (3) having a valued place in the world.Conclusions This study reinforces the notion that change in self-identity is an important aspect of life after TBI, and provides information on what this concept means to people with TBI. In order to scientifically evaluate relationships between self-identity and other aspects of health (eg, depression, quality of life), and to test the effect of interventions to address problems with self-identity after TBI, a quantitative tool for evaluation of this construct is required. Themes from this research provide a foundation for the development of a measure of self-identity grounded in the language and experience of people with TBI.
机译：目的建立一个理论上合理的，基于客户的框架，以支持反映创伤性脑损伤（TBI）对一个人的自我身份影响的衡量标准的开发。设计基于扎根的理论，基于与人的焦点小组会议的录音转录经历过TBI的患者，并采用恒定的比较方法进行分析。在新西兰建立了8个不同的城乡社区。参与者49人（34名男性，15名女性），在轻度至重度TBI之后6个月至36年。结果中心概念从数据中浮现出来的是渴望成为或已经失去了成为一个综合和有价值的人的感觉。三个主要子主题是：（1）对自身具有连贯，满意和完整的感觉；（2）对他人的尊重，确认和接受；（3）在世界上具有重要地位。结论本研究强化了改变的观念自我认同是TBI后生活的重要方面，并向TBI患者提供有关该概念含义的信息。为了科学地评估自我认同与健康其他方面（例如抑郁症，生活质量）之间的关系，并测试在TBI之后用于解决自我认同问题的干预措施的效果，这是一种用于评估此结构的定量工具是必须的。这项研究的主题为基于TBI人的语言和经验的自我认同度量的发展奠定了基础。

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