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Protections and communication for tribal entities involved in research

机译：对参与研究的部落实体的保护和交流

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Native American tribes are increasingly use of designated Institutional Review Boards to provide review, approval and ongoing oversight of research involving Native participants. In this capacity, tribal IRBs examine research protocols for potential risks to specific native groups to which investigators may be unaware. In addition to identifying these risks for future researchers, we will also provide examples of how Native concepts can be integrated into research protocols, the reporting of results back to participants and communities and to tribal IRBs. The first example examines the approval disaster research protocols for Native communities and first responders who will come into direct contact with environmental contaminants when natural disasters occur on or near Native lands. Recognizing the rapid nature of exposure to communities and during response work, scalable research protocols for health effects are increasingly available. We will examine the approval of such protocols to be both sensitive to Native perspectives and inclusive of health effects in Native workers and communities exposed to environmental contaminants in the aftermath of disasters. The second example examines the important role of Native research teams in translating research results back to communities and tribal IRBs drawing illustrations from the UNM Navajo Birth Cohort Study. With significant input from Navajo research team members, communication also emphasizes risk avoidance and prevention of exposures as an appropriate way to build environmental health knowledge base in uranium mine waste exposed communities and across Navajo Nation. We will summarize the format used to inform Tribal leadership, the Human Research Review Board and to the Navajo Area Indian Health Service medical providers.
机译：美国原住民部落越来越多地使用指定的机构审查委员会来提供审查，批准和正在进行的对涉及原住民参与者的研究的监督。以这种身份，部族IRB会检查研究方案，以了解调查员可能不知道的特定本地人群的潜在风险。除了为未来的研究人员确定这些风险外，我们还将提供示例，说明如何将本机概念整合到研究协议中，将结果报告给参与者和社区以及部落IRB。第一个示例检查了针对土著社区和第一响应者的批准灾难研究协议，当自然灾难发生在本地土地上或附近时，他们将与环境污染物直接接触。认识到接触社区的迅速性质以及在响应工作期间，针对健康影响的可扩展研究方案越来越多。我们将检查此类协议的批准，使其既对土著人的观点敏感，又对灾难后遭受环境污染物侵害的土著人工人和社区的健康影响包括在内。第二个示例考察了土著研究团队在将研究结果转换回社区和部落IRB中的重要作用，这些研究借鉴了UNM Navajo出生队列研究的插图。在纳瓦霍人研究小组成员的大量投入下，交流还强调了规避风险和预防接触，这是在铀矿山废弃物暴露社区和整个纳瓦霍人国家建立环境健康知识库的适当方法。我们将总结用于通知部落领导，人类研究审查委员会以及纳瓦霍地区印度卫生服务医疗提供者的格式。

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