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首页> 外文会议>IEEE International Conference on Bioinformatics and Biomedicine >Participatory design-based requirements elicitation involving people living with dementia towards a home-based platform to monitor emotional wellbeing
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Participatory design-based requirements elicitation involving people living with dementia towards a home-based platform to monitor emotional wellbeing

机译：基于参与式设计的需求启发，将患有痴呆症的人引入基于家庭的平台，以监控情绪健康

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We are living in an ageing population with an escalation in chronic illnesses including dementia and other age related diseases. People living with dementia often continue to live at home and are supported by caregivers and next of kin. It is often important to monitor the wellbeing of people living with dementia in order to measure their level of independence and to provide proper support at the time of need as well as supporting their quality of life. Some researchers have focused on monitoring physical wellbeing and activities of daily living (ADL). However, there has been a paucity of research focussed on monitoring mood, affect and the emotional wellbeing of people living with dementia, despite these people experiencing frustration, agitation, depression and social isolation to name but a few known effects. As a result, the SenseCare project aims to build an affective computing platform that uses sensors placed in the home environment to monitor moods, affect and the emotional wellbeing of people living with dementia. This platform is being iteratively designed and will likely use plug-n-play sensors such as passive infrared, wearables and camera technologies to infer emotions from facial expressions, voice intonations and physical behaviour and other modalities. However, it is important to interact iteratively with people living with dementia and their caregivers in order to understand their profound needs. In this study, we report on two focus groups that were conducted to elicit user stories and eventual requirements for the SenseCare platform. Since participatory design involving people living with dementia could bring about unique challenges, we adopted a dyad approach where a caregiver and the person living with dementia participate together in the focus group. This ensures that their needs are fully represented and that consent is fully transparent. In this paper, we report the personal stories elicited during these discussions which will ultimately inform the implementation of the SenseCare platform.
机译：我们居住在患有患者和其他年龄相关疾病的慢性疾病中升级的人口升级。生活在痴呆症的人经常继续住在家里，并由护理人员和亲张的亲属支持。监测痴呆症生活的人们的福祉往往是很重要的，以衡量他们的独立水平，并在需要时提供适当的支持，并支持他们的生活质量。一些研究人员专注于监测物理健康和日常生活活动（ADL）。然而，尽管这些人遭受了挫败感，激动，抑郁和社会孤立，但既缺乏监测情绪，影响痴呆症的人的情绪健康的研究又有贫困的研究。因此，SenseCare项目旨在建立一个情感计算平台，该平台使用放置在家庭环境中的传感器来监测痴呆症患者的情绪，影响和情感福祉。该平台正在迭代设计，可能会使用Plug-N-Play传感器，例如被动红外，可穿戴物和相机技术，以从面部表情，语音语调和物理行为和其他方式的推断出来的情绪。然而，重要的是与生活在痴呆症及其护理人员的人迭代地互动，以了解他们深刻的需求。在这项研究中，我们报告了两个焦点小组，该组是引出用户故事和对SenseCare平台的最终要求。由于涉及痴呆症的人们的参与式设计可以带来独特的挑战，因此我们采用了一种Dyad方法，即护理人员和痴呆症的人一起参加焦点小组。这确保了他们的需求完全代表，同意是完全透明的。在本文中，我们报告了在这些讨论期间引发的个人故事最终会通知实施SenseCare平台。

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