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A Practical Approach to Balancing Data Confidentiality and Research Needs: The NHIS Linked Mortality Files

机译:平衡数据机密性和研究需求的实用方法:NHIS链接死亡档案

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Demand is increasing for statistical agencies to integrate information from different sources and to make such data files publicly available. The National Center for Health Statistics (NCHS) conducts record linkage activities for its surveys, with a major focus being the linkage to the National Death Index. In 2004, NCHS updated the mortality follow-up for the National Health Interview Survey (NHIS) which, because of confidentiality protections, was made available only through the NCHS Research Data Center. In 2007, NCHS released a public-use version of the NHIS Linked Mortality Files. The release of a public-use file was based upon an approach to maximize the amount of mortality information included and minimize the amount of perturbed data, while maintaining the confidentiality protections of survey participants. Comparative analyses between the public-use and restricted-use linked mortality files show that the two data files yield very similar results for both all-cause and cause-specific mortality.
机译:统计机构的需求正在增加,以将信息集成来自不同来源的信息,并公开提供这些数据文件。国家卫生统计中心(NCHS)为其调查进行了记录的联系活动,重点是对国家死亡指数的联系。 2004年,NCHS更新了国家健康面试调查(NHI)的死亡率随访,因为保密保护,仅通过NCHS研究数据中心提供。 2007年,NCHS发布了NHIS链接死亡率文件的公用使用版本。公共使用文件的发布是基于最大化死亡率信息的方法,并最大限度地减少扰动数据的数量,同时保持调查参与者的机密性保护。公共使用和限制使用链接的死亡率文件的比较分析表明,两个数据文件对全部原因和造成特定的死亡率产生了非常相似的结果。

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