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Education of the rabbinical and genetic counseling communities to promote culturally sensitive genetic testing decisions for the Orthodox Jewish patient.

机译：对阿拉伯和遗传咨询社区进行教育，以促进对东正教犹太人患者进行文化敏感的基因检测决策。

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摘要

The tight-knit Orthodox Jewish community offers unique views on topics of prenatal testing, abortion, and carrier screening. These views gain relevance in the prenatal genetic counseling setting in which Orthodox Jewish patients are confronted with choices carrying profound religious and cultural implications. Rabbis typically offer spiritual guidance through a personalized interpretation of the Jewish law (the halacha) based on the specific situation of the Orthodox Jewish person or couple. While having religious context is an important aspect of decision-making for Orthodox Jewish patients, genetic topics are often left out of the discussion even though they may play an integral role in the decision. This omission is problematic when one considers the many reasons for which rabbis may be counseling congregants on their own and its effect on immediate and future reproductive decisions. Physicians have been referring fewer Orthodox Jewish patients to genetic counseling because of the assumption that religious constraints would lead such patients to decline genetic testing. In addition, the genetic counseling community has been seen by some to be coercive and insensitive to the unique needs of the Orthodox Jewish population. There has been an awareness of the void between the Orthodox Jewish and genetic counseling communities but it has not been filled. Spiritual assessment tools have been marketed to the genetic counseling profession but many factors have contributed to their lack of widespread use in sessions. This paper expands on how educating the rabbinical community about genetic topics, as well as encouraging the genetic counseling community to incorporate spiritual assessment tools into counseling sessions, has the potential to promote culturally sensitive genetic testing decisions for the Orthodox Jewish patient.
机译：紧密联系的东正教犹太人社区对产前检查，堕胎和携带者筛查等话题提供了独特的见解。这些观点在产前遗传咨询中具有重要意义，在这种情况下，东正教犹太人患者面临着具有深远宗教和文化含义的选择。犹太教教士通常根据东正教犹太人或夫妻的具体情况，通过对犹太法律（哈拉查）的个性化解释来提供精神指导。尽管对于东正教犹太人患者来说，拥有宗教背景是决策的重要方面，但是遗传话题经常被排除在讨论之外，即使它们可能在决策中起着不可或缺的作用。当人们考虑到拉比可能会自己向混血儿提供咨询的许多原因及其对即时和未来生殖决定的影响时，这种遗漏是有问题的。由于宗教限制会导致此类患者拒绝基因检测，因此医师一直在向较少的东正教犹太人患者转介基因咨询。另外，一些人认为遗传咨询团体对东正教犹太人的独特需求具有强制性和敏感性。人们已经意识到东正教犹太人和遗传咨询社区之间的空白，但尚未填补。精神评估工具已经销售给遗传咨询专业，但是许多因素导致它们在会议中缺乏广泛使用。本文扩展了如何对犹太教社区进行遗传主题教育，以及如何鼓励遗传咨询社区将精神评估工具纳入咨询课程，从而有可能促进对东正教犹太人患者进行文化敏感的基因检测决策。

著录项

  • 作者

    Haskins, Rebecca.;

  • 作者单位

    Sarah Lawrence College.;

  • 授予单位 Sarah Lawrence College.;
  • 学科 Medical ethics.;Health education.
  • 学位 M.S.
  • 年度 2010
  • 页码 34 p.
  • 总页数 34
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

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