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A mixed methods study to develop an instrument to assess family quality of life among caregivers of adults with traumatic brain injury.

机译：一项混合方法研究，旨在开发一种工具来评估颅脑外伤成人的看护人的家庭生活质量。

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摘要

Purpose: Traumatic brain injury (TBI) is a major public health problem. It is the leading cause of disability and death among young adults and children globally. Family members often assume the primary caregiving role for the member with TBI; this responsibility may lead to less than ideal family outcomes. The purpose of this mixed methods study was to develop a valid and reliable survey instrument to assess hypothesized domains of Family Quality of Life (FQOL) among caregivers of adults with moderate-severe TBI.;Method: The first phase critically assessed literature on family-level outcome measures for families with a member with TBI. Findings were used to develop a draft survey instrument to assess FQOL among caregivers of adults with moderate-severe TBI. Collecting quantitative and qualitative data from 16 TBI rehabilitation content experts during the second phase enabled the researcher to develop a content valid instrument. The third phase qualitatively pre-tested the instrument by conducting cognitive interviews (think-alouds and verbal probing) with eight purposefully selected caregivers of adults with moderate-severe TBI. The fourth phase quantitatively examined the psychometric properties (construct validity and internal consistency reliability) of the instrument by collecting data from 95 caregivers of adults with moderate-severe TBI.;Analysis/Results: The systematic review of literature resulted in a draft instrument. The second phase of the study yielded a revised instrument with five hypothesized domains of FQOL. Content experts guided selection of a five-point Likert-type response scale to measure items. In the third phase, theme(s) emerged during caregiver cognitive interviews for each hypothesized domain of FQOL; data guided development of additional items about caregiver problem solving. In the final phase, exploratory factor analysis revealed a four-factor solution. Internal consistency reliability estimates shaped the final instrument which included a 10-item Family Supports factor (alpha .946), 19-item Family Relationships factor (alpha .961), 8-item Family Physical/Material Well-Being factor (alpha 892), and 6-item Head Injury Services factor (alpha .890). The Cronbach's alpha for the 43-item instrument was .972.;Conclusions: The researcher applied a sequential four-phase mixed methods research design to develop the TBI-FQOL Instrument. Statistical results indicate the instrument has a moderate-high level of construct validity and internal consistency reliability.
机译：目的：颅脑外伤（TBI）是主要的公共卫生问题。它是全球青年和儿童致残和死亡的主要原因。家庭成员通常是TBI成员的主要护理角色。这种责任可能导致家庭结果不理想。这项混合方法研究的目的是开发一种有效且可靠的调查工具，以评估中度重度TBI成年人的看护者的假设家庭生活质量（FQOL）领域。方法：第一阶段关于家庭的严格评估文献包括：有TBI成员的家庭的水平结果评估。调查结果用于制定调查工具草案，以评估中度重度TBI成人的看护者中的FQOL。在第二阶段中，从16名TBI康复内容专家那里收集了定量和定性数据，这使研究人员能够开发出一种内容有效的工具。第三阶段通过对八位有中度严重TBI的成年人进行有针对性地选择的看护人进行认知访谈（思维方式和言语探测），对仪器进行了定性的预测试。第四阶段通过收集来自中度重度TBI的95位成人的看护人的数据，定量地检查了该仪器的心理测量特性（构造效度和内部一致性可靠性）。分析/结果：对文献的系统评价得出了该仪器的草案。研究的第二阶段产生了修订的工具，其中包含五个假设的FQOL域。内容专家指导选择五点李克特式反应量表来测量项目。在第三阶段中，在每个假设的FQOL领域，护理者认知访谈中都出现了主题。数据指导了有关照顾者问题解决的其他项目的开发。在最后阶段，探索性因素分析揭示了一种四因素解决方案。内部一致性可靠性估计值形成了最终的工具，其中包括10个项目的家庭支持因子（alpha .946），19个项目的家庭关系因子（alpha .961），8个项目的家庭物质/物质幸福因子（alpha 892）以及6项头部受伤服务系数（alpha .890）。结论：该研究人员应用顺序四相混合方法研究设计开发了TBI-FQOL仪器，该43项仪器的Cronbach的alpha为.972。统计结果表明该仪器具有中等高水平的结构有效性和内部一致性可靠性。

著录项

  • 作者

    Firsing, Stephen L., III.;

  • 作者单位

    The University of Alabama at Birmingham.;

  • 授予单位 The University of Alabama at Birmingham.;
  • 学科 Health Sciences General.;Health Sciences Public Health.;Psychology Psychometrics.
  • 学位 Ph.D.
  • 年度 2013
  • 页码 390 p.
  • 总页数 390
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

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