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Sleep and Quality of Life among Family Caregivers with Children Who Have Autism Spectrum Disorders.

机译:自闭症谱系障碍患儿的家庭护理人员的睡眠和生活质量。

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摘要

Autism Spectrum Disorder (ASD) holds potential for significantly impacting the primary caregiver and family, as well as the child with ASD. In particular, sleep problems occur frequently among children with ASD, and their poor sleep may negatively affect that of their caregivers. Health-related quality of life (HRQoL) and Family Quality of Life (FQoL) are salient indices of caregiver and family well-being. This pilot study explored associations between family caregiver sleep problems and caregiver sense of coherence (SOC) or coping on HRQoL and FQoL. Additionally, this study examined relationships between child sleep and behavior problems on caregiver sleep and well-being.;Sixty-two family caregivers of children with ASD (M =7.61, range: 6-11 years old) participated in this survey study. Participants provided demographic information and completed measures of HRQoL, FQoL, caregiver sleep, SOC, parental stress, child sleep, and child behavior.;Caregivers with longer sleep duration reported better mental health and better FQol. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. A stronger caregiver SOC was associated with lower caregiver stress, better mental health, and better FQoL. Significant relationships were found between shorter caregiver sleep duration or sleep disorder symptoms (i.e., difficulty staying asleep, early morning awakening, insufficient sleep) and greater child sleep problems. Moreover, short sleep duration or insufficient sleep among caregivers was significantly associated with greater parenting stress. Notably, biological parents with Restless Legs Syndrome (RLS) had children with more restless sleep and higher rates of some behavior problems.;There are a number of potential connections between sleep problems of children with ASD and sleep problems of their caregivers that are likely rooted in genetic, environmental, socio-economic, and behavioral factors. Interventions for sleep problems must address the context of the family and consider that sleep problems may be common to the caregiver and the child. The results of this study support findings from many prior studies and point to salient variables for future research and interventions to promote healthy caregiver sleep.
机译:自闭症谱系障碍(ASD)具有显着影响主要照料者,家庭以及患有ASD的孩子的潜力。特别是,患有自闭症的儿童经常出现睡眠问题,他们的不良睡眠可能会对照顾者的睡眠产生负面影响。与健康相关的生活质量(HRQoL)和家庭生活质量(FQoL)是照顾者和家庭幸福的重要指标。这项前瞻性研究探讨了家庭照顾者睡眠问题与照顾者的连贯感(SOC)或应对HRQoL和FQoL之间的关联。此外,该研究还检查了儿童睡眠与照料者睡眠和幸福行为问题之间的关系。; 62名ASD儿童的家庭照料者(M = 7.61,范围:6-11岁)参加了这项调查研究。参与者提供了人口统计学信息并完成了HRQoL,FQoL,照顾者睡眠,SOC,父母压力,儿童睡眠和儿童行为的完整测量;睡眠时间较长的护理人员报告了更好的心理健康状况和FQol。报告失眠症状,非恢复性睡眠和睡眠不足的护理人员比没有报告这些睡眠障碍症状的护理人员更有可能报告较差的心理健康。照顾者的SOC越高,照顾者的压力越低,心理健康越好,FQoL越好。在较短的照顾者睡眠时间或睡眠障碍症状(即难以入睡,清晨醒来,睡眠不足)和较大的儿童睡眠问题之间发现了显着的关系。此外,照顾者之间的睡眠时间短或睡眠不足与更大的父母压力显着相关。值得注意的是,患有不安定腿综合征(RLS)的亲生父母的孩子睡眠更不安定,某些行为问题发生率更高;; ASD儿童的睡眠问题与照料者的睡眠问题之间可能存在许多潜在的联系遗传,环境,社会经济和行为因素。对睡眠问题的干预措施必须针对家庭的情况,并认为睡眠问题可能是照料者和孩子所共有的。这项研究的结果支持了许多先前的研究结果,并指出了未来研究和干预措施的显着变量,以促进护理者的健康睡眠。

著录项

  • 作者

    Russell, Maureen.;

  • 作者单位

    Arizona State University.;

  • 授予单位 Arizona State University.;
  • 学科 Occupational safety.;Public health.;Clinical psychology.;Behavioral psychology.;Health care management.
  • 学位 Ph.D.
  • 年度 2014
  • 页码 178 p.
  • 总页数 178
  • 原文格式 PDF
  • 正文语种 eng
  • 中图分类
  • 关键词

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