Objective: To investigate the correlation between self-management behavior and quality of life in nephrotic syndrome (NS). Methods: The self-management questionnaire and SF-36 were used to inquire 160 NS patients. Results:The self-management level of the NS patient was moderate or poor. The scores of all the dimensions of the SF-36 were markedly lower in the NS patients than norms, with significant differences (P＜0.01). The self-management level of the NS patient was associated with all the dimensions of the SF-36 positively (P＜0.05) or P＜0.01). Conclusion: Nursing staff should guide the self-management behavior, enhance the health education, and raise the self-care ability, and thus improve the quality of life in NS patients.%目的:探讨肾病综合征(NS)患者自我管理水平与生活质量的相关性.方法:采用自我管理调查量表和健康调查简易量表(SF-36)对160例NS患者进行问卷调查.结果:NS患者自我管理能力处于中等或者较差水平;NS患者的SF-36各维度评分均明显低于国内常模,差异有高度统计学意义(P＜0.01);NS患者的自我管理水平与生活质量各维度均呈显著正相关(P＜0.05或P＜0.01).结论:护理人员应对NS患者的自我管理行为给予引导,强化自我管理健康教育,增强其自我管理能力,继而提高患者的生活质量.
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