Objective We aimed to develop a network of patients based on evidence-based medicine(EBM) concepts in order to help patients obtain evidence, promote them to participate in evidence-based practice(EBP) and strengthen the interaction between them.Methods We summarized and analyzed the data of 7 mainstream EBM websites, including Best Practice, DynaMed Plus, UpToDate, Trip Database, Cochrane Library, NICE and NGC and investigated their forms for presenting evidence. With patients' ability in perception and information needs taken into consideration, we designed several functional modules including evidence retrieval and social network service(SNS) for patients. The web-based system was designed and developed based on current mature Web development technology.Results Applying EBM concepts to network of patients was clarified. Forms of patient-centered evidence presentation and communication tools were designed. The network of patients developed consists of four modules: EBM, medical evidence retrieval, patients SNS and health management.Conclusion EBM concepts-based network of patients can improve patients' perception of EBM and EBP, help patients find up-to-date and high-quality evidence. Furthermore, the SNS module can improve humanistic concern among patients, and collection of patients' health records can provide potential sources for future research on patient self-reported outcome.%目的 搭建基于循证医学理念的病友网络,帮助患者获取证据,促进患者参与循证实践,增进患者间的沟通互动.方法 综合分析各类主流的循证网络资源Best Practice、DynaMed Plus、UpToDate、Trip Database、Cochrane Library、NICE、NGC,探讨其证据呈递形式.结合患者认知能力和信息需求,设计病友网络的证据查询和患者在线社区等功能模块.基于当前成熟的Web系统开发技术实现网络.结果 本研究提出了将循证医学理念应用于病友网络的构想,设计了以患者为中心的证据呈递形式和患者沟通工具,开发了由循证医学、医疗查证、病友社区和健康管理4个功能模块组成的病友网络系统.结论 基于循证医学理念的病友网络有利于拓展患者的循证知识,帮助患者快速获取高质量的干预措施证据,社交功能有助于增进人文关怀,患者健康数据的收集为开展患者报告结局的研究提供了基础.
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