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Adherence to monthly online self-assessments for short-term monitoring: a 1-year study in relapsing-remitting multiple sclerosis patients after start of disease modifying treatment

机译：坚持每月在线自我评估以进行短期监测：在开始进行疾病改良治疗后对复发缓解型多发性硬化症患者进行的为期1年的研究

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摘要

BackgroundThe participation of neurologists and patients in studies on the effectiveness and safety of newly authorized drugs in multiple sclerosis (MS) is insufficient. Monthly online self-assessments using patient-reported outcomes may help in short-term monitoring of neurological changes and side effects.

机译：背景：神经科医生和患者对新授权药物治疗多发性硬化症（MS）的有效性和安全性的研究不足。使用患者报告的结果进行的每月在线自我评估可能有助于短期监测神经系统变化和副作用。

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期刊名称 Patient preference and adherence
作者
Peter Joseph Jongen; Evert Sanders; Cees Zwanikken; Jan Koeman; Leo H Visser; Petra Koopmans; Dirk Lehnick;
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作者单位

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年(卷),期 2013(7),-1
年度 2013
页码 293–300
总页数 8
原文格式 PDF
正文语种
中图分类基础医学;
关键词
effectiveness glatiramer acetate fatigue health-related quality of life MFIS-5 LMSQoL;

机译：功效;醋酸格拉替雷;疲劳;与健康相关的生活质量;MFIS-5;LMSQoL;

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专利

1. Adherence to monthly online self-assessments for short-term monitoring: a 1-year study in relapsing-remitting multiple sclerosis patients after start of disease modifying treatment [J] . Peter Joseph Jongen, Evert Sanders, Cees Zwanikken, Patient Preference and Adherence . 2013,第2期

机译：坚持每月在线自我评估以进行短期监测：一项为期1年的研究，用于开始疾病改良治疗后复发缓解的多发性硬化症患者
2. The Global Adherence Project (GAP): a multicenter observational study on adherence to disease-modifying therapies in patients with relapsing-remitting multiple sclerosis. [J] . Devonshire V, Lapierre Y, Macdonell R, European journal of neurology: the official journal of the European Federation of Neurological Societies . 2011,第1期

机译：全球依从性计划（GAP）：对复发缓解型多发性硬化症患者依从疾病改良疗法的依从性的多中心观察性研究。
3. Adherence to Disease-Modifying Agents and Association with Quality of Life Among Patients with Relapsing-Remitting Multiple Sclerosis [J] . Mirela Cerghet, Elizabeth Dobie, Jennifer Elston Lafata, International journal of MS care . 2010,第2期

机译：复发缓解型多发性硬化症患者对疾病改良剂的依从性及其与生活质量的关系
4. Predicting Future Disease Activity and Treatment Responders for Multiple Sclerosis Patients Using a Bag-of-Lesions Brain Representation [C] . Andrew Doyle, Doina Precup, Douglas L. Arnold, International conference on medical imaging computing and computer-assisted intervention . 2017

机译：使用病变袋大脑表示法预测多发性硬化症患者的未来疾病活动和治疗反应者
5. The Effect of an Online Coping Skill Application on Relapsing-Remitting Multiple Sclerosis Sufferers. [D] . Garrison, Jennifer. 2015

机译：在线应对技能应用对复发缓解型多发性硬化症患者的影响。
6. Treatment satisfaction with injectable disease-modifying therapies in patients with relapsing-remitting multiple sclerosis (the STICK study) [O] . Oscar Fernández, Eduardo Duran, Teresa Ayuso, -1

机译：复发缓解型多发性硬化症患者对可注射疾病改变疗法的治疗满意度（STICK研究）
7. Treatment satisfaction with injectable disease-modifying therapies in patients with relapsing-remitting multiple sclerosis (the STICK study). [O] . Oscar Fernández, Eduardo Duran, Teresa Ayuso, 2017

机译：复发缓解型多发性硬化患者对注射型疾病改善疗法的治疗满意度（sTICK研究）。

Adherence to monthly online self-assessments for short-term monitoring: a 1-year study in relapsing-remitting multiple sclerosis patients after start of disease modifying treatment

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