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Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design methodology recruitment data quality and study population

机译：患有性发育障碍/性发育差异（DSD）的成人参与临床研究dsd-LIFE：设计方法招募数据质量和研究人群

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摘要

Backgrounddsd-LIFE is a comprehensive cross-sectional clinical outcome study of individuals with disorders/differences of sex development (DSD). This study focuses on various rare genetic conditions characterized by impaired gonadal or adrenal functionality.

机译：Backgrounddsd-LIFE是一项针对具有性发育障碍/差异（DSD）的个体进行的全面横断面临床结局研究。这项研究的重点是性腺或肾上腺功能受损的各种罕见遗传病。

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期刊名称 BMC Endocrine Disorders
作者
Robert Röhle; Katharina Gehrmann; Maria Szarras-Czapnik; Hedi Claahsen-van der Grinten; Catherine Pienkowski; Claire Bouvattier; Peggy Cohen-Kettenis; Anna Nordenström; Ute Thyen; Birgit Köhler; Birgit Köhler; Peggy Cohen-Kettenis; Annelou de Vries; Wiebke Arlt; Claudia Wiesemann; Jolanta Slowikowska-Hilczer; Aude Brac de la Perriere; Charles Sultan; Francoise Paris; Claire Bouvattier; Ute Thyen; Nicole Reisch; Annette Richter-Unruh; Hedi Claahsen-van der Grinten; Anna Nordenström; Catherine Pienkowski; Maria Szarras-Czapnik;
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年(卷),期 2017(17),-1
年度 2017
页码 52
总页数 26
原文格式 PDF
正文语种
中图分类基础医学;
关键词
Disorders of sex development Differences of sex development DSD Sexual differentiation Interdisciplinary care European network;

机译：性发育障碍;性发育差异;DSD;性别分化;跨学科护理;欧洲网络;

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专利

1. Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population [J] . Robert R?hle, Katharina Gehrmann, Maria Szarras-Czapnik, BMC Endocrine Disorders . 2017,第1期

机译：患有性发育障碍/性发育差异（DSD）的成人参与临床研究dsd-LIFE：设计，方法，招募，数据质量和研究人群
2. Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference populations (dsd-LIFE) [J] . Marion Rapp, Esther Mueller-Godeffroy, Peter Lee, Health and Quality of Life Outcomes . 2018,第1期

机译：与国家特定参考人群（DSD-Life）相比，多环境横断面临床评价研究（DSD）的障碍/差异（DSD）
3. Sexuality in Adults with Differences/Disorders of Sex Development (DSD): Findings from the dsd-LIFE Study [J] . Kreukels Baudewijntje P. C., Cohen-Kettenis Peggy T., Roehl Robert, Journal of sex and marital therapy . 2019,第5a8期

机译：具有差异/性行为的成人性的性行为（DSD）：来自DSD-Life研究的调查结果
4. Methodological consideration in clinical studies of #omega#3 fatty acids in major depression and bipolar disorder [C] . Andrew L. Stoll, Karen E. Damico, Brian P. Daly International Society for the Study of Fatty Acids and Lipids(ISSFAL) Congress . 2001

机译：主要抑郁症与双相障碍的临床研究中临床研究的方法考虑
5. A STUDY OF THE RELATIONSHIP OF GENDER ROLE IDENTITY AND FUTURE TIME PERSPECTIVE IN MALE AND FEMALE ADULTS: SEX DIFFERENCES IN ATTITUDE, REALISM AND PLANNING [D] . WADSWORTH, CARMEN SCHOENEMAN 1985

机译：男性和女性成年人的性别角色认同与未来时间的关系研究：态度，现实主义和计划的性别差异
6. Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference populations (dsd-LIFE) [O] . Marion Rapp, Esther Mueller-Godeffroy, Peter Lee, 2018

机译：与国家特定参考人群（dsd-LIFE）相比关于有性发育障碍/性发育差异（DSD）的成年人的生活质量的多中心横断面临床评估研究
7. Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population [O] . Röhle, Robert, Gehrmann, Katharina, Szarras-Czapnik, Maria, 2017

机译：患有性发育障碍/性发育差异（DSD）的成人参与临床研究dsd-LIFE：设计，方法，招募，数据质量和研究人群

Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design methodology recruitment data quality and study population

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