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Developing a Multidisciplinary Team for Disorders of Sex Development: Planning Implementation and Operation Tools for Care Providers

机译:建立一个针对性发展障碍的多学科团队:护理人员的计划实施和操作工具

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摘要

In the treatment of patients with disorders of sex development (DSD), multidisciplinary teams (MDTs) represent a new standard of care. While DSDs are too complex for care to be delivered effectively without specialized team management, these conditions are often considered to be too rare for their medical management to be a hospital priority. Many specialists involved in DSD care want to create a clinic or team, but there is no available guidance that bridges the gap between a group of like-minded DSD providers who want to improve care and the formation of a functional MDT. This is an important dilemma, and one with serious implications for the future of DSD care. If a network of multidisciplinary DSD teams is to be a reality, those directly involved in DSD care must be given the necessary program planning and team implementation tools. This paper offers a protocol and set of tools to meet this need. We present a 6-step process to team formation, and a sample set of tools that can be used to guide, develop, and evaluate a team throughout the course of its operation.
机译:在治疗具有性发育障碍(DSD)的患者时,多学科团队(MDT)代表了新的护理标准。尽管DSD太复杂而无法在没有专业团队管理的情况下有效地进行护理,但这些情况通常被认为对于他们的医疗管理来说太罕见了,因此无法作为医院的重点。许多参与DSD护理的专家都想创建一个诊所或团队,但是没有可用的指导来弥合一群希望改善护理与功能性MDT形成的志趣相投的DSD提供者之间的鸿沟。这是一个重要的难题,对DSD护理的未来具有严重的影响。如果要实现由多学科DSD团队组成的网络,则必须为直接参与DSD护理的人员提供必要的计划规划和团队实施工具。本文提供了可以满足此需求的协议和工具集。我们提出了组成团队的6个步骤,并提供了一系列示例工具,可用于在整个团队运作过程中指导,发展和评估团队。

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