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首页> 美国卫生研究院文献>Elsevier Sponsored Documents >Measuring quality of life in mental health: Are we asking the right questions?
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Measuring quality of life in mental health: Are we asking the right questions?

机译：衡量心理健康中的生活质量：我们在问正确的问题吗？

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Measuring quality-adjusted-life years using generic preference-based quality of life measures is common practice when evaluating health interventions. However, there are concerns that measures in common use, such as the EQ-5D and SF-6D, focus overly on physical health and therefore may not be appropriate for measuring quality of life for people with mental health problems. The aim of this research was to identify the domains of quality of life that are important to people with mental health problems in order to assess the content validity of these generic measures. Qualitative semi-structured interviews were conducted with 19 people, recruited from UK mental health services, with a broad range of mental health problems at varying levels of severity. This complemented a previous systematic review and thematic synthesis of qualitative studies on the same topic. Seven domains important to quality of life for people with mental health problems were identified: well-being and ill-being; relationships and a sense of belonging; activity; self-perception; autonomy, hope and hopelessness; and physical health. These were consistent with the systematic review, with the addition of physical health as a domain, and revealed a differing emphasis on the positive and negative aspects of quality of life according to the severity of the mental health problems. We conclude that the content of existing generic preference-based measures of health do not cover this domain space well. Additionally, because people may experience substantial improvements in their quality of life without registering on the positive end of a quality of life scale, it is important that the full spectrum of negative through to positive aspects of each domain are included in any quality of life measure.
机译：在评估健康干预措施时，通常使用基于偏好的生活质量衡量标准来衡量质量调整生命年。但是，令人担忧的是，诸如EQ-5D和SF-6D之类的常用措施过于关注身体健康，因此可能不适用于测量患有精神疾病的人的生活质量。这项研究的目的是确定生活质量的领域，这些领域对于精神健康问题患者至关重要，以便评估这些通用措施的内容有效性。从英国心理健康服务机构招募的19人进行了定性的半结构化访谈，调查对象针对各种严重程度不同的心理健康问题进行了访谈。这补充了先前对同一主题的系统研究和定性研究的主题综合。确定了对精神健康问题者的生活质量至关重要的七个领域：幸福和不适；关系和归属感；活动;自我感知自主，希望和绝望；和身体健康。这些与系统评价一致，增加了身体健康作为一个领域，并且根据精神健康问题的严重性，揭示了对生活质量的正面和负面方面的不同重视。我们得出的结论是，现有的基于通用偏好的卫生措施的内容不能很好地涵盖此领域空间。此外，由于人们可能会经历生活质量的显着改善，而无需关注生活质量量表的积极方面，因此重要的是，每个领域的消极到积极方面都应包括在任何生活质量衡量标准中。

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