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首页> 外文期刊>British Educational Research Journal >Reported school experiences of young people living with sickle cell disorder in England
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Reported school experiences of young people living with sickle cell disorder in England

机译：英格兰有镰状细胞病的年轻人的上学经历的报告

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摘要

A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One in eight has school absences equating to government-defined 'persistent absence'. Students with SCD report that they are not helped to catch up after these school absences. Half the children reported not being allowed to use the toilet when needed and not being allowed water in class; a third reported being made to take unsuitable exercise and being called lazy when tired. Children perceived both physical environment (temperature, school furniture) and social environment (being upset by teachers or other pupils) as triggers to episodes of their illness. Policy initiatives on school absences; preventive measures to ensure maintenance of good health; and measures to prevent perceived social attitudes precipitating ill health would also support children with other chronic illnesses at school.
机译：对英格兰的569名患有镰状细胞病（SCD）的年轻人进行的调查发现，这些学生在学校放假的时间很长，通常是两到三天。八分之一的学生缺勤相当于政府定义的“持续缺勤”。患有SCD的学生报告说，在这些学校缺课之后，他们并没有得到帮助。一半的儿童报告说，在需要时不被允许上厕所和上课时不被允许上水；三分之一的人报告说要进行不适当的运动，累时被称为懒惰。孩子们认为身体环境（温度，学校家具）和社交环境（被老师或其他学生困扰）都是引发疾病的诱因。关于失学的政策倡议；预防措施，以确保身体健康；采取预防措施，防止人们认为自己的社会态度加剧健康状况不佳，也将为患有其他慢性疾病的儿童提供支持。

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  • 来源
    《British Educational Research Journal》 |2010年第1期|125-142|共18页
  • 作者

    Simon Martin Dyson; Hala Abuateya; Karl Atkin; Lorraine Culley; Sue Elizabeth Dyson; Dave Rowley;

  • 作者单位

    Unit for the Social Study of Thalassaemia and Sickle Cell, De Montfort University, Leicester, UK;

    Unit for the Social Study of Thalassaemia and Sickle Cell, De Montfort University, Leicester, UK;

    Department of Health Sciences, University of York, York, UK;

    Applied Social Sciences, De Montfort University, Leicester, UK;

    Nursing and Midwifery, De Montfort University, Leicester, UK;

    Allied Health Sciences, De Montfort University, Leicester, UK;

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