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Sickle cell habitual dys-positions and fragile dispositions: young people with sickle cell at school

机译:镰状细胞习惯性的不良姿势和易碎的性格:学校里有镰状细胞的年轻人

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摘要

The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu’s notions of field, capital and habitus. Young people with sickle cell are found to be habitually dys-positioned between the demands of the clinic for health maintenance through self-care and the field of the school, with its emphases on routines, consistent attendance and contextual demands for active and passive pupil behaviour. The tactics or dispositions that young people living with sickle cell can then employ, during strategy and struggle at school, are therefore fragile: they work only contingently, transiently or have the unintended consequences of displacing other valued social relations. The dispositions of the young people with sickle cell are framed by other social struggles: innovations in school procedures merely address aspects of sickle cell in isolation and are not consolidated into comprehensive policies; mothers inform, liaise, negotiate and advocate in support of a child with sickle cell but with limited success. Reactions of teachers and peers to sickle cell have the enduring potential to drain the somatic, cultural and social capital of young people living with sickle cell.
机译:通过对40个访谈的主题分析,使用布迪厄的田野,资本和惯性概念,对英格兰学校中患有镰状细胞病的年轻人的经历进行了报道。人们发现,镰状细胞的年轻人习惯性地处于诊所自我保健和学校领域之间对健康维持的要求之间的位置,偏重于常规,持续出勤以及主动和被动学生行为的背景要求。因此,患有镰状细胞的年轻人在学校的策略和斗争中可以采用的策略或性格是脆弱的:他们只是偶然地,短暂地工作,或者具有取代其他有价值的社会关系的意想不到的后果。镰状细胞的年轻人的性格特征还受到其他社会斗争的限制:学校程序的创新仅仅孤立地解决了镰状细胞的各个方面,并未纳入综合政策;母亲告知,联络,谈判和主张支持镰状细胞但成功率有限的孩子。老师和同伴对镰状细胞的反应具有持久的潜力,可以耗尽镰状细胞生活的年轻人的身体,文化和社会资本。

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