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首页> 外文期刊>BMC Medical Informatics and Decision Making >Family history assessment for colorectal cancer (CRC) risk analysis - comparison of diagram- and questionnaire-based web interfaces
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Family history assessment for colorectal cancer (CRC) risk analysis - comparison of diagram- and questionnaire-based web interfaces

机译：大肠癌（CRC）风险分析的家族史评估-基于图表和问卷的Web界面比较

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Colorectal cancer (CRC) has a high incidence, especially in New Zealand. The reasons for this are unknown. While most cancers develop sporadically, a positive family history, determined by the number and age at diagnosis of affected first and second degree relatives with CRC is one of the major factors, which may increase an individual’s lifetime risk. Before a patient can be enrolled in a surveillance program a detailed assessment and documentation of the family history is important but time consuming and often inaccurate. The documentation is usually paper-based. Our aim was therefore to develop and validate the usability and efficacy of a web-based family history assessment tool for CRC suitable for the general population. The tool was also to calculate the risk and make a recommendation for surveillance. Two versions of an electronic assessment tool, diagram-based and questionnaire-based, were developed with the risk analysis and recommendations for surveillance based on the New Zealand Guidelines Group recommendations. Accuracy of our tool was tested prior to the study by comparing risk calculations based on family history by experienced gastroenterologists with the electronic assessment. The general public, visiting a local science fair were asked to use and comment on the usability of the two interfaces. Ninety people assessed and commented on the two interfaces. Both interfaces were effective in assessing the risk to develop CRC through their familial history for CRC. However, the questionnaire-based interface performed with significantly better satisfaction (p?=?0.001) than the diagram-based interface. There was no difference in efficacy though. We conclude that a web-based questionnaire tool can assist in the accurate documentation and analysis of the family history relevant to determine the individual risk of CRC based on local guidelines. The calculator is now implemented and assessable through the web-page of a local charity for colorectal cancer awareness and integral part of the local general practitioners’ e-referral system for colonic imaging.
机译：大肠癌（CRC）的发病率很高，尤其是在新西兰。原因尚不清楚。尽管大多数癌症是偶发性发展，但由确诊患有CRC的一级和二级亲戚诊断的人数和年龄决定的阳性家族史是主要因素之一，这可能会增加个人的一生风险。在将患者纳入监护程序之前，详细的评估和家族病史的记录很重要，但很耗时，而且常常不准确。该文档通常是基于纸张的。因此，我们的目标是开发和验证适用于一般人群的基于网络的CRC家族史评估工具的可用性和功效。该工具还可以计算风险并提出监测建议。开发了两种版本的电子评估工具，分别是基于图表和基于问卷的，并根据新西兰指南小组的建议进行了风险分析和监测建议。在研究之前，我们通过比较经验丰富的胃肠病医生基于家族史的风险计算结果和电子评估结果对我们工具的准确性进行了测试。要求公众访问当地的科学博览会，以使用和评论这两个界面的可用性。九十个人对这两个界面进行了评估和评论。两种接口均可有效地通过其家族史来评估患CRC的风险。但是，与基于图表的界面相比，基于问卷的界面的满意度显着提高（p≥0.001）。疗效没有差异。我们得出的结论是，基于网络的问卷调查工具可以帮助准确记录和分析相关的家族史，从而根据当地指南确定CRC的个体风险。现在可以通过当地慈善机构的网页来实现和评估该计算器，以提高人们对结肠直肠癌的认识，并可以通过当地全科医生的电子转诊系统进行结肠成像。

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