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首页> 外文期刊>BMC Medical Informatics and Decision Making >Design and implementation of the first nationwide, web-based Chinese Renal Data System (CNRDS)
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Design and implementation of the first nationwide, web-based Chinese Renal Data System (CNRDS)

机译：设计和实现全国首个基于网络的中国肾脏数据系统（CNRDS）

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Background In April 2010, with an endorsement from the Ministry of Health of the People's Republic of China, the Chinese Society of Nephrology launched the first nationwide, web-based prospective renal data registration platform, the Chinese Renal Data System (CNRDS), to collect structured demographic, clinical, and laboratory data for dialysis cases, as well as to establish a kidney disease database for researchers and policy makers. Methods The CNRDS program uses information technology to facilitate healthcare professionals to create a blood purification registry and to deliver an evidence-based care and education protocol tailored to chronic kidney disease, as well as online forum for communication between nephrologists. The online portal https://www.cnrds.net webcite is implemented as a Java web application using an Apache Tomcat web server and a MySQL database. All data are stored in a central databank to establish a Chinese renal database for research and publication purposes. Results Currently, over 270,000 clinical cases, including general patient information, diagnostics, therapies, medications, and laboratory tests, have been registered in CNRDS by 3,669 healthcare institutions qualified for hemodialysis therapy. At the 2011 annual blood purification forum of the Chinese Society of Nephrology, the CNRDS 2010 annual report was reviewed and accepted by the society members and government representatives. Conclusions CNRDS is the first national, web-based application for collecting and managing electronic medical records of patients with dialysis in China. It provides both an easily accessible platform for nephrologists to store and organize their patient data and acts as a communication platform among participating doctors. Moreover, it is the largest database for treatment and patient care of end-stage renal disease (ESRD) patients in China, which will be beneficial for scientific research and epidemiological investigations aimed at improving the quality of life of such patients. Furthermore, it is a model nationwide disease registry, which could potentially be used for other diseases.
机译：背景技术2010年4月，在中华人民共和国卫生部的认可下，中国肾脏病学会启动了第一个基于网络的全国性前瞻性肾脏数据注册平台，即中国肾脏数据系统（CNRDS），以收集为透析病例提供结构化的人口统计，临床和实验室数据，并为研究人员和决策者建立肾脏疾病数据库。方法CNRDS计划使用信息技术来帮助医疗保健专业人员创建血液净化注册表，并提供针对慢性肾脏疾病的循证护理和教育协议，以及肾脏病专家之间的在线论坛。在线门户https://www.cnrds.net Webcite使用Apache Tomcat Web服务器和MySQL数据库作为Java Web应用程序实现。所有数据均存储在中央数据库中，以建立中国肾脏数据库以供研究和出版之用。结果目前，有3,669个具有血液透析治疗资格的医疗机构在CNRDS中注册了超过270,000例临床病例，包括一般患者信息，诊断，治疗，药物和实验室检查。在中国肾脏病学会2011年度血液净化论坛上，CNRDS 2010年度报告被社会成员和政府代表审查并接受。结论CNRDS是中国第一个基于网络的全国性应用程序，用于收集和管理透析患者的电子病历。它为肾脏病医生提供了一个易于访问的平台来存储和组织其患者数据，并充当参与医生之间的交流平台。此外，它是中国最大的终末期肾病（ESRD）患者治疗和患者护理数据库，这将有助于旨在改善此类患者生活质量的科学研究和流行病学调查。此外，它是全国性疾病登记册的典范，有可能用于其他疾病。

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