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首页> 外文期刊>BMC Medical Informatics and Decision Making >Information sharing across generations and environments (InfoSAGE): study design and methodology protocol
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Information sharing across generations and environments (InfoSAGE): study design and methodology protocol

机译：跨代和跨环境的信息共享（InfoSAGE）：研究设计和方法协议

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Longevity creates increasing care needs for healthcare providers and family caregivers. Increasingly, the burden of care falls to one primary caregiver, increasing stress and reducing health outcomes. Additionally, little has been published on adults’, over the age of 75, preferences in the development of health information sharing with family members using online platforms. This study aims to assess a novel, Internet based, family-centric communication and collaboration platform created to address the information needs of elders and their informal caregivers in a community setting. This study is an internet-based, open prospective cohort study, enrolling dyad pairs of one adult over the age of 75 with one informal caregiver. Dyads will be offered to use the InfoSAGE online platform without prospective assignment. Participants will consent using an online process that enables participation from any location and shares important study and privacy details. The platform will enable the capture of search queries and tracking of functions such as tasks and discussions. Surveys every six months assess health status, health and social needs, and caregiver burden using validated instruments over a two-year period. We will use a mixed methods approach, utilizing qualitative survey data along with website usage analytic data. Analysis of the longitudinal usage and survey data will help to examine the patterns of family communication and health information seeking as the central older adult ages. We will use the study data to inform design recommendations relevant to a complex mixture of users, with special consideration to the needs of older adult users and potential physical limitations.
机译：长寿为医疗保健提供者和家庭护理人员带来了越来越多的护理需求。护理负担越来越多地落在一名主要护理人员身上，增加了压力并降低了健康结果。此外，关于75岁以上成年人在使用在线平台与家人共享健康信息方面的偏好很少发表。这项研究旨在评估一个新颖的，以互联网为基础，以家庭为中心的交流与协作平台，该平台旨在解决社区中老年人及其非正式照料者的信息需求。这项研究是一项基于互联网的开放式前瞻性队列研究，招募了一对75岁以上的成年人与一个非正式的看护人进行双胞胎配对。 Dyads将提供使用InfoSAGE在线平台的功能，无需事先分配。参加者将同意使用在线过程进行同意，该过程可从任何位置进行参加，并共享重要的研究和隐私详细信息。该平台将能够捕获搜索查询并跟踪诸如任务和讨论之类的功能。每六个月进行一次调查，使用经过验证的工具在两年内评估健康状况，健康和社会需求以及看护者的负担。我们将使用混合方法，利用定性调查数据以及网站使用情况分析数据。纵向使用情况和调查数据的分析将有助于检查作为成年人中心年龄段的家庭交流和健康信息的模式。我们将使用研究数据为与复杂用户群相关的设计建议提供参考，并特别考虑老年人的需求和潜在的身体限制。

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