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首页> 外文期刊>BMC Palliative Care >Twenty years of home-based palliative care in Malappuram, Kerala, India: a descriptive study of patients and their care-givers
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Twenty years of home-based palliative care in Malappuram, Kerala, India: a descriptive study of patients and their care-givers

机译:印度喀拉拉邦马拉普拉姆的家庭姑息治疗20年:对患者及其照顾者的描述性研究

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The well lauded community-based palliative care programme of Kerala, India provides medical and social support, through home-based care, for patients with terminal illness and diseases requiring long-term support. There is, however, limited information on patient characteristics, caregivers and programme performance. This study was carried out to describe: i) the patients enrolled in the programme from 1996 to 2016 and their diagnosis, and ii) the care-giver characteristics and palliative care support from nurses and doctors in a cohort of patients registered during 2013–2015. A descriptive study was conducted in the oldest community-based palliative clinic in Kerala. Data were collected from annual patient registers from 1996 to 2016 and patient case records during the period 2013–2015. While 91% of the patients registered in the clinic in 1996 had cancer, its relative proportion came down to 32% in 2016 with the inclusion of dementia-related illness (19%) cardiovascular accidents (17%) and severe mental illness (5%).Among patients registered during 2013–15, the median number of home visits from nurses and doctors in 12?months were five and one respectively. In the same cohort, twelve months’ post-enrolment, 56% of patients died, 30% were in continuing in active care and 7% opted out. Those who opted out of care were likely to be aged
机译:印度喀拉拉邦备受好评的基于社区的姑息治疗计划通过家庭护理为患有绝症和需要长期支持的患者提供医疗和社会支持。但是,关于患者特征,护理人员和计划执行的信息有限。进行这项研究的目的是描述:i)1996年至2016年参加该计划的患者及其诊断,以及ii)2013-2015年期间注册的一组患者中护士和医生的照顾者特征和姑息治疗支持。在喀拉拉邦最古老的社区姑息诊所进行了描述性研究。数据收集自1996年至2016年的年度患者登记册以及2013-2015年期间的患者病例记录。虽然1996年在诊所注册的患者中有91%患有癌症,但相对比例在2016年下降至32%,其中包括痴呆相关疾病(19%),心血管意外(17%)和严重精神疾病(5% )。在2013-15年度登记的患者中,护士和医生在12个月内进行家访的中位数分别为5和1。在同一队列中,入组十二个月后,有56%的患者死亡,有30%的患者继续接受积极护理,有7%的患者选择退出。那些选择不护理的人可能年龄小于60岁,每年接受一次或少于一次医生看病,或患有严重的精神疾病。 96%的患者在家中有照料者,其中85%是女性。在印度喀拉拉邦的这种姑息治疗计划在20年的时间里不断变化的动态,突显了需要类似的计划来保持灵活性并适应其服务,以应对日益增长的全球非传染性疾病负担。尽管预计该人群的死亡率较高,但选择留在该计划中的患者比例很高,这表明家庭护理在该特定人群中受到重视。在照顾此类人群时,需要各种临床和心理社会支持技能来协助家庭及其照料者。

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