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Informal carers’ health-related quality of life and patient experience in primary care: evidence from 195,364 carers in England responding to a national survey

机译:非正式护理人员与健康相关的生活质量和患者在初级保健方面的经验:来自195,364名英格兰护理人员的证据回应了一项全国调查

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Background We aim to describe the health-related quality of life of informal carers and their experiences of primary care. Methods Responses from the 2011-12 English General Practice Patient Survey, including 195,364 informal carers, were analysed using mixed effect logistic regressions controlling for age, gender, ethnicity and social deprivation to describe carer health-related quality of life (mobility, self-care, usual activities, pain, and anxiety/depression, measured using EQ-5D) and primary care experience (access, continuity and communication). Results Informal carers reported poorer health-related quality of life than non-carers of similar age, gender, ethnicity and social deprivation. Increasing caring commitment was associated with worse EQ-5D scores, with carers of 50+ hours a week scoring 0.05 points lower than non-carers (95?% CI 0.05 to 0.04), equivalent to 18 fewer days of full health annually. Considering each domain of EQ-5D separately, carers of 50+ hours/week were more likely to report pain OR?=?1.53 (1.50-1.57), p? Conclusions Informal carers experience a double disadvantage of poorer health-related quality of life and poorer patient experience in primary care. We find no evidence for health benefits of caregiving. We recommend physicians identify and treat carer health problems, including pain and anxiety/depression, particularly among young, deprived and high time-commitment carers. Improving patient experience for carers, including access to primary care, should be a priority.
机译:背景我们旨在描述非正式护理人员与健康相关的生活质量及其初级保健经验。方法:采用混合效应逻辑回归分析分析2011-12年英语全科患者调查(包括195,364名非正式护理人员)的回答,控制年龄,性别,种族和社会剥夺,以描述与护理人员健康相关的生活质量(活动能力,自我保健) ,日常活动,疼痛和焦虑/抑郁(使用EQ-5D进行衡量)和初级保健经历(访问,连续性和沟通)。结果非正式护理人员报告说,与健康相关的生活质量较年龄,性别,种族和社会剥夺相似的非护理人员要差。关怀承诺的增加与EQ-5D评分的降低有关,每周50个小时以上的关怀者的得分比非关怀者低0.05个百分点(95%CI为0.05至0.04),相当于每年减少18天。分别考虑EQ-5D的每个领域,每周护理50小时以上的人更有可能报告疼痛OR?=?1.53(1.50-1.57),p?。结论非正式护理人员面临与健康相关的生活质量较差和初级保健患者体验较差的双重弊端。我们没有证据表明护理能带来健康益处。我们建议医生识别和治疗护理人员的健康问题,包括疼痛和焦虑/抑郁,尤其是在年轻,贫困和时间长的护理人员中。优先考虑改善护理人员的病历,包括获得初级保健的机会。

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