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首页> 外文期刊>BMC Family Practice >Implementing resources to support the diagnosis and management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in primary care: A qualitative study
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Implementing resources to support the diagnosis and management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in primary care: A qualitative study

机译：开展资源以支持初级保健中慢性疲劳综合症/肌性脑脊髓炎（CFS / ME）的诊断和管理：一项定性研究

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Background Previous research has highlighted that many GPs lack the confidence and knowledge to diagnose and manage people with CFS/ME. Following the development of an online training module for GPs, and an information pack and DVD for patients, this study explored the extent to which these resources can be implemented in routine primary care. Methods Semi structured qualitative interviews were completed with patients and GPs across North West England. All interviews were transcribed and analysed using open exploratory thematic coding. Following this thematic analysis, the authors conducted a further theory-driven analysis of the data guided by Normalisation Process Theory. Results When used in line with advice from the research team, the information resource and training were perceived as beneficial to both patients and GPs in the diagnosis and management of CFS/ME. However, 47?% of patients in this study did not receive the information pack from their GP. When the information pack was used, it was often incomplete, sent in the post, and GPs did not work with patients to discuss the materials. Only13 out of 21 practices completed the training module due to time pressures and the low priority placed on low prevalence, contentious, hard to manage conditions. When the module was completed, many GPs stated that it was not feasible to retain the key messages as they saw so few patients with the condition. Due to the complexity of the condition, GPs also believed that the diagnosis and management of CFS/ME should take place in a specialist care setting. Conclusion While barriers to the implementation of training and resources for CFS/ME remain, there is a need to support CFS/ME patients to access reliable, evidence based information outside primary care. Our findings suggest that future research should develop an online resource for patients to support self-management.
机译：背景技术先前的研究表明，许多全科医生缺乏诊断和管理CFS / ME患者的信心和知识。在开发了针对GP的在线培训模块以及针对患者的信息包和DVD之后，本研究探索了可以在常规初级保健中实施这些资源的程度。方法对英格兰西北部的患者和全科医生进行了半结构化的定性访谈。使用公开的探索性主题编码对所有访谈进行转录和分析。在进行了主题分析之后，作者对由归一化过程理论指导的数据进行了进一步的理论驱动的分析。结果当根据研究团队的建议使用时，信息资源和培训被认为对CFS / ME的诊断和管理对患者和GP均有益。但是，这项研究中有47％的患者未从其全科医生那里获得信息包。使用信息包时，信息包通常是不完整的，邮寄后就发送了，GP也没有与患者一起讨论材料。由于时间压力和对低患病率，争议性，难以管理的条件的低优先级，在21种实践中只有13种完成了培训模块。当模块完成后，许多全科医生表示保留关键信息是不可行的，因为他们看到的病人很少。由于病情复杂，全科医生还认为，CFS / ME的诊断和管理应在专科护理机构中进行。结论虽然在实施CFS / ME培训和资源方面仍然存在障碍，但仍需要支持CFS / ME患者在初级保健之外获得可靠的，基于证据的信息。我们的发现表明，未来的研究应该为患者开发在线资源，以支持自我管理。

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