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首页> 外文期刊>BMJ Open Respiratory Research >Relating Experienced To Recalled breathlessness Observational (RETRO) study: a prospective study using a mobile phone application
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Relating Experienced To Recalled breathlessness Observational (RETRO) study: a prospective study using a mobile phone application

机译：涉及到的呼气喘息观察性研究（RETRO）研究：使用手机应用程序的前瞻性研究

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Background Breathlessness, the subjective sensation of breathing discomfort, is common and appears in the daily life of people with cardiorespiratory diseases. Physicians often rely on patient’s history based on symptom recall. The relation between recalled and experienced breathlessness is still poorly understood. This paper presents the protocol for a study primarily aimed at evaluating the relationship between experienced breathlessness and (1) recalled breathlessness and (2) predicted future breathlessness.Methods A mobile phone application will be used to collect data during daily life. Medically stable participants, ≥18 years of age with mean daily breathlessness of Numerical Rating Scale (NRS) 3/10 and able to use a mobile phone with internet will rate their breathlessness intensity on a 0–10 NRS prompted the user several times daily for 1?week. Participants will recall their breathlessness each day and week. Multivariable random effects regression models will be used for statistical analyses.Results Results of the study will be submitted for publication in peer-reviewed journals and presented at relevant conferences.Discussion This protocol describes a study aimed at investigating previously unknown areas of the experience and recall of breathlessness using a new method of data collection.Registration details Prospectively registered with ClinicalTrials.gov (Nr: NCT03468205).Ethics and dissemination The study has received ethical approval from the Regional Ethical Review Board Lund (DNr 2017/149). After a general study information including that participation is entirely voluntary, participants will answer the eligibility criteria and be asked to consent to participate before entering the study questions. Written informed consent to participate will be obtained for participants in the clinical sub-cohort. Participation can be discontinued at the discretion of the participant in which case no further data will be collected.
机译：背景技术呼吸困难是呼吸不适的主观感觉，是常见的，并且出现在患有心肺疾病的人们的日常生活中。医生通常根据症状的回忆来依赖患者的病史。召回与经历过的呼吸困难之间的关系仍然知之甚少。本文提出了一项研究协议，主要旨在评估经历的呼吸困难与（1）回忆的呼吸困难和（2）预测的未来呼吸困难之间的关系。方法将使用手机应用程序收集日常生活中的数据。具有医学稳定性的参与者，年龄≥18岁，平均每日呼吸困难，其数值等级量表（NRS）为3/10，并且能够通过互联网使用移动电话，他们会在0-10 NRS上对用户的呼吸困难强度进行评分，每天提示用户多次1周。参与者将每天和每周回顾自己的呼吸困难。多变量随机效应回归模型将用于统计分析。结果研究结果将提交至同行评审的期刊上发表，并在相关的会议上进行讨论。讨论本协议描述了一项旨在调查先前未知的经验和回忆的研究使用新的数据收集方法治疗呼吸困难。注册详细信息可能已在ClinicalTrials.gov（Nr：NCT03468205）上进行了注册。在获得包括参与完全是自愿的一般学习信息之后，参与者将回答资格标准，并被要求同意参与，然后再输入研究问题。临床分组的参与者将获得参加的书面知情同意书。参与者可以自行决定是否中止参与，在这种情况下，将不会收集更多数据。

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