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Parent and Child Report of Pain and Fatigue in JIA: Does Disagreement between Parent and Child Predict Functional Outcomes?

机译：JIA的父母与孩子痛苦和疲劳报告：父母与孩子之间的分歧是否可以预测功能结果？

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While previous research in juvenile idiopathic arthritis (JIA) has identified discrepancy between parent and child perception of disease-related symptoms such as pain, the significance and impact of this disagreement has not been characterized. We examined the extent to which parent-child discordance in JIA symptom ratings are associated with child functional outcomes. Linear regression and mixed effects models were used to test the effects of discrepancy in pain and fatigue ratings on functional outcomes in 65 dyads, consisting of youth with JIA and one parent. Results suggested that children reported increased activity limitations and negative mood when parent and child pain ratings were discrepant, with parent rated child pain much lower. Greater discrepancy in fatigue ratings was also associated with more negative mood, whereas children whose parent rated child fatigue as moderately lower than the child experienced decreased activity limitations relative to dyads who agreed closely on fatigue level. Implications of these results for the quality of life and treatment of children with JIA are discussed.
机译：尽管先前对青少年特发性关节炎（JIA）的研究已经确定了父母和孩子对与疾病相关的症状（例如疼痛）的感知之间的差异，但尚未明确这种分歧的重要性和影响。我们研究了JIA症状分级中的亲子矛盾与儿童功能结局之间的关联程度。线性回归和混合效应模型用于测试疼痛和疲劳等级差异对65岁儿童的功能结局的影响，其中包括JIA青年和一名父母。结果表明，当父母和孩子的疼痛等级不符时，儿童报告的活动受限和负性情绪增加，而父母给孩子的疼痛要低得多。疲劳评分的更大差异还与更多的负面情绪相关，而与父母对疲劳水平达成一致的双性恋相比，父母将孩子的疲劳归为比孩子低的孩子的活动受限减少。讨论了这些结果对JIA儿童生活质量和治疗的意义。

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