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首页> 外文期刊>International Journal of General Medicine >The impact of patients' chronic disease on family quality of life: an experience from 26 specialties
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The impact of patients' chronic disease on family quality of life: an experience from 26 specialties

机译：慢性病对家庭生活质量的影响：26个专业的经验

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Background: Previous studies have assessed family quality of life in individual disease areas and specialties. The aim of this study was to investigate the impact of disease on family members of patients over a wide range of specialties and identify key impact areas. This information is essential in order to reveal the extent of this impact and to allow strategies to be developed to support the family members of patients with chronic disease. Methods: Semi-structured interviews were carried out with 133 family members of mostly chronically ill patients from 26 medical specialties. Family members were invited to discuss all areas of their lives that had been affected by having an unwell relative. Thematic analysis was carried out using NVivo9? software. Results: Most family members were female (61%), the partner or spouse of the patient (56%), or the parent (22%). Their mean age was 56.1 years (range: 21–85 years) and the mean duration of the patient's disease was 8.9 years (range: 1 month to 60 years). Ten key themes of family quality of life were identified from interviews. The median number of themes reported by family members was six (range: 1–10). The key themes included: emotional impact (mentioned by 92% of subjects), daily activities (91%), family relationships (69%), sleep and health (67%), holidays (62%), involvement in medical care and support given to family members (61%), work and study (52%), financial impact (51%), social life (37%), and time planning (14%). Relationships between the themes were identified. Conclusion: This large scale multi-specialty study has demonstrated the significant, yet similar, impact that illness can have on the quality of life of patients' family members. Family quality of life is a previously neglected area of health care which needs to be addressed in order to provide appropriate support for the patient and the family unit.
机译：背景：先前的研究已经评估了各个疾病领域和专科的家庭生活质量。这项研究的目的是调查疾病对广泛专业领域患者家庭成员的影响，并确定主要影响领域。该信息对于揭示这种影响的程度并允许制定支持慢性病患者家属的策略至关重要。方法：对来自26个医学专业的133位主要是慢性病患者的家庭成员进行了半结构式访谈。邀请家庭成员讨论因生病而受到影响的所有生活领域。主题分析是使用NVivo9？进行的。软件。结果：大多数家庭成员为女性（61％），患者的伴侣或配偶（56％）或父母（22％）。他们的平均年龄为56.1岁（范围：21–85岁），患者疾病的平均病程为8.9年（范围：1个月至60岁）。通过访谈确定了家庭生活质量的十个关键主题。家庭成员报告的主题中位数为六个（范围：1-10）。关键主题包括：情感影响（92％的受试者提到），日常活动（91％），家庭关系（69％），睡眠和健康（67％），假期（62％），参与医疗和支持给予家庭成员（61％），工作和学习（52％），财务影响（51％），社会生活（37％）和计划时间（14％）。确定了主题之间的关系。结论：这项大规模的多专业研究表明，疾病可能对患者家庭成员的生活质量产生重大而相似的影响。家庭生活质量是以前被忽略的医疗保健领域，需要解决这个问题，以便为患者和家庭单位提供适当的支持。

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