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首页> 外文期刊>Ecancermedicalscience >To know or not to know? Not the only question in familial breast cancer risk communication
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To know or not to know? Not the only question in familial breast cancer risk communication

机译：知道还是不知道？并非家族性乳腺癌风险沟通中的唯一问题

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BackgroundBreast cancer is th e most frequently diagnosed cancer and the leading cause of cancer death in females, 5 ¨C10% of these breast cancers occur in women because of an inherited mutation. The term 'risk' in relation to familial cancer can have multiple meanings for both clinicians and patients. Failing to identify and address this may impair effective co mmunication and informed decision making and adversely affect the quality of patie nt care.The aim of this research for the Eurocancercoms proje ct was to explore patients' experience of risk communication in breast cancer and to investigate a mechanism for sharing these experiences using a filmed round-table discussion (RTD).MethodsA filmed RTD with six women who had experience of, o r some connection with familial breast cancer was conducted. Criteria for inclusion included a willingness and ability to participate in the discussion in English and to be prepared for the discussion to be hosted online with opportunities for others to view and comment.Re sultsThe main findings are presented as key themes and issues arising from the RTD. There was consistency in the group on the need for improvements to the risk communication process as a whole and in particular around onward diffusio n of information i.e. 'Telling the family'. There were differences regarding 'wanting to know' their genetic status.ConclusionsThe perception of cancer risk in the narratives stems not only from the way risks are stated, but from family history, per-sonal experiences, cultural norms and be liefs and therefore a multifaceted approach to risk communication addressing the se issues is necessary to ensure the patient fully understands the potential risks. There is a balance when attending to patient's information needs, as to what level and amount of information is required by the individual at a particular time and communicators need to be able to tailor information accordingly
机译：背景乳腺癌是最常被诊断的癌症，是女性癌症死亡的主要原因，其中5–10％的乳腺癌是由于遗传突变而发生的。与家族性癌症相关的“风险”一词对临床医生和患者都有多种含义。未能识别和解决此问题可能会削弱有效的沟通和明智的决策，并不利地影响患者的护理质量。这项针对Eurocancercoms项目的研究的目的是探讨患者在乳腺癌中进行风险沟通的经验并进行调查方法：采用摄制圆桌讨论（RTD）的方式分享这些经验。方法对六名有家族性乳腺癌经验或与之相关的女性进行了RTD摄制。纳入标准包括愿意和有能力参加英语讨论，并准备将讨论在线进行，并有机会供其他人查看和评论。结果主要发现是RTD提出的关键主题和问题。 。该小组一致认为需要改进整个风险沟通流程，尤其是围绕信息的进一步传播，即“介绍家人”。在“想知道”他们的遗传状态方面存在分歧。结论叙述中对癌症风险的感知不仅取决于风险的表述方式，还取决于家族史，个人经历，文化规范和自尊心，因此是多方面的解决这些问题的风险沟通方法对于确保患者充分了解潜在风险非常必要。在照顾患者的信息需求时，要考虑到个人在特定时间需要什么水平和多少信息，并且沟通者需要能够相应地调整信息，这是一个平衡点

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