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首页> 外文期刊>Einstein (So Paulo) >From one side to the other: what is essential? Perception of oncology patients and their caregivers in the beginning of oncology treatment and in palliative care
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From one side to the other: what is essential? Perception of oncology patients and their caregivers in the beginning of oncology treatment and in palliative care

机译：从一侧到另一侧：必不可少的是什么？在肿瘤治疗开始和姑息治疗中对肿瘤患者及其护理人员的看法

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Objective To evaluate the perception of oncology patients and their caregivers upon diagnosis and beginning of the therapy and during palliative care.Methods A cross-sectional study at the oncology and palliative care outpatients clinics of the Faculdade de Medicina do ABC. Clinical and demographic data from patients and their caregivers were collected and questionnaires regarding the elements considered important in relation to the treatment were applied.Results We enrolled 32 patients and 23 caregivers that were initiating treatment at the oncology outpatient clinic, as well as 20 patients and 20 caregivers at the palliative care clinic. Regarding the patients treated at the oncology clinic, the issues considered most important were a physician available to discuss the disease and answer questions (84%), trust in the physician (81%), and a physician with accessible language (81%). For their caregivers, the following issues were considered extremely important: trust in the medical team that treats the patients (96%), and the same medical team taking care of their relatives (87%). As to patients treated at the palliative care clinic, trust in the physician (83%), to be with people considered important to them (78%), and to be treated preserving their dignity (72%) were considered extremely important. For their caregivers, to receive adequate information about the disease and the treatment’s risks and benefits (84%), and sincere communication of information about the disease (79%) were considered extremely relevant.Conclusion Confidence through good communication and consistency in care were fundamental values to achieve satisfaction among caregivers and patients with cancer during all the course of disease development.
机译：目的评估肿瘤患者及其护理人员在诊断，开始治疗以及姑息治疗过程中的感受。收集了患者及其护理人员的临床和人口统计学数据，并使用了与治疗有关的重要元素的问卷。结果我们招募了32名患者和23名开始在肿瘤科门诊就诊的护理人员，以及20名患者。姑息治疗诊所的20位照顾者。对于在肿瘤诊所接受治疗的患者，被认为最重要的问题是可用来讨论疾病和回答问题的医师（84％），对医师的信任度（81％）和能使用语言的医师（81％）。对于他们的看护人来说，以下问题被认为是极其重要的：信任治疗患者的医疗团队（96％），以及同一个照顾其亲属的医疗团队（87％）。对于在姑息治疗诊所接受治疗的患者，信任医生（83％），与被认为对他们重要的人在一起（78％）和接受治疗以保持其尊严（72％）非常重要。对于他们的看护人来说，要获得足够的疾病信息以及治疗的风险和益处（84％），并且真诚地交流有关疾病的信息（79％）被认为是非常重要的。结论良好的沟通和护理的一致性是信心的根本。在疾病发展的所有过程中，使护理人员和癌症患者感到满意的价值观。

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