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A Photo Elicitation Study on Chronically Ill Adolescentsa?? Identity Constructions During Transition:

机译:慢性病青少年的照片启发研究?过渡期间的身份构造:

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Adolescence is an important phase of life with increasing independence and identity development, and a vulnerable period of life for chronically ill adolescents with a high occurrence of insufficient treatment adherence. We conducted four photo elicitation focus group interviews with 14 adolescents (12-20 years) with juvenile idiopathic arthritis to investigate identity constructions during transition. Using a discourse analysis approach, six identity types were identified distributed on normal and marginal identities, which were lived either at home (home arena) or outside home with peers (out arena). Most participants positioned themselves as normal in the out arena and as ill in the home arena. Few participants positioned themselves as ill in an out arena, and they described how peers perceived this as a marginal and skewed behavior. This study contributes to a better understanding of why it can be extremely difficult to live with a chronic illness during adolescence.
机译:青春期是生活中重要的阶段,具有越来越大的独立性和身份认同感,对于处于长期治疗依从性不佳的慢性病青少年来说,这是一个脆弱的时期。我们对14名青少年特发性关节炎青少年进行了四次照片激发焦点小组访谈,以调查过渡期的身份建构。使用话语分析方法,确定了六种身份类型,这些身份类型分布在正常身份和边缘身份上,这些身份类型生活在家里(家庭场所)或与同伴一起在家外(场所)。大多数参与者在户外舞台上将自己定位为正常,而在本国舞台上则定位为患病。很少有参与者将自己定位为病态,而他们则描述了同龄人如何将其视为边缘行为和偏斜行为。这项研究有助于更好地理解为什么青春期患慢性病可能极其困难。

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