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Perspectives on Living With Fibromyalgia:

机译:纤维肌痛的生活观点:

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Perceptions of people living with chronic illness change over time, contributing to health-related stress that necessitates coping skills. Patersona??s shifting perspectives model provides an explanation of chronically ill peoplea??s variations in attention to their symptoms. In this qualitative study, 20 people with fibromyalgia living in a rural setting were interviewed in 2013 with the aim of gaining insight into their experiences and the meaning-making associated with their chronic condition. Analysis of the interview data categorized five recurrent, or common, themes: experiences of loss, feelings of fear and uncertainty, influence of stress, stigmatization of the disease, and coping through courage. Difficulties attendant to losses, distress, and stigma associated with this chronic condition led the participants to report poor health-related quality of life. The study findings can be useful across clinical settings to nurses and other health care providers in understanding those diagnosed with fibromyalgia and their care needs.
机译:随着时间的流逝,人们对慢性病患者的认知会发生变化,从而导致与健康相关的压力,需要应对技巧。帕特森纳(Patersona)的视角转变模型为慢性病患者注意症状的变化提供了解释。在这项定性研究中,2013年对20名生活在农村地区的纤维肌痛患者进行了采访,目的是了解他们的经验以及与慢性病相关的意义。对访谈数据的分析分为五个经常性或常见的主题:丧失经历,恐惧和不确定感,压力的影响,疾病的污名化和通过勇气应对。与这种慢性病相关的损失,困扰和污名带来的困难导致参与者报告了与健康相关的不良生活质量。研究结果在整个临床环境中对护士和其他医疗保健提供者很有用,有助于他们了解诊断为纤维肌痛的患者及其护理需求。

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