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首页> 外文期刊>Global Qualitative Nursing Research >Care Experiences of Adults With a Dual Diagnosis and Their Family Caregivers:
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Care Experiences of Adults With a Dual Diagnosis and Their Family Caregivers:

机译：双重诊断的成年人及其家庭护理人员的护理经验：

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Individuals diagnosed with developmental disability and mental illness (a a??dual diagnosisa??) contend with multiple challenges and system-related barriers. Using an interpretive description approach, separate qualitative interviews were conducted with adults with a dual diagnosis (n = 7) and their caregiving parents (n = 8) to examine care-related experiences. Results indicate that individuals with a dual diagnosis and their families experience misunderstanding and stigma. Families provide informal complex care amid insufficient and uncoordinated services but are often excluded from formal care planning. A lack of available funding and services further impedes care. While negative care experiences are reported as prevalent, participants also describe instances of beneficial care. Overall, findings indicate a lack of sufficiently targeted resources, leaving families to absorb system-related care gaps. Recommendations include person- and family-centered care, navigation support, and capacity building. Prevention and emergency and crisis care services, along with housing, vocation, and other supports, are needed. Practice and research development regarding life span needs are recommended.
机译：被诊断患有发育障碍和精神疾病的人（双重诊断a）要面对多重挑战和与系统相关的障碍。使用解释性描述方法，对患有双重诊断的成年人（n = 7）和他们的照顾父母（n = 8）进行了单独的定性访谈，以检查与护理相关的经历。结果表明，具有双重诊断的个人及其家庭会遇到误会和污名。家庭在服务不足和不协调的情况下提供非正式的综合护理，但经常被排除在正式的护理计划之外。缺乏可用的资金和服务进一步阻碍了护理。虽然负面护理经历据报道很普遍，但参与者还描述了有益护理的实例。总体而言，调查结果表明缺乏足够有针对性的资源，使家庭不得不承担与系统相关的护理缺口。建议包括以人和家庭为中心的护理，导航支持和能力建设。需要预防，紧急和危机护理服务以及住房，职业和其他支持。建议进行有关寿命需求的实践和研究。

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